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Oral vit D is not well absorbed in anyone that's why they recommend sunshine, but then many of us don't have a choice. My local MS group sells it at cost as it is implicated in MS but some people had to stop taking it because they were getting bone problems and disturbed calcium balance in the...

While it is good when an official cause of death is given as ME we all know that it should be listed as a secondary cause at least on the death certificate of every one who had ME and the only reason it isn't is because of the politics of the disease. Very few people with MS die of MS itself...

The science of vit D seems sound despite anything. We slather ourselves with sun tan lotion and do not get nearly as much sunshine as we need. Bodies can't function without vitamins, you get scurvy and blindness from others. Vit D deficiency may have looked less common because in the discovery...

I often stumble when I blink but, like others it varies in intensity. It does not happen when I hold onto something and I realised that I press my feet down hard when it is dark or I have to stand without touching anything, and that pressure prevents the stumble as it helps my body decide where...

Round about the time there was all that kerfuffle about Roy Meadows who's opinions got women imprisoned, people in the US said parents who seemed likely to sue a doctor or hospital for the way their child was being treated were increasingly being accused of Munchhausen's by proxy. All you needed...

I suspect that people with ME feel more pain in the same way pressing on a bruise hurts more than pressing another piece of skin, but that they put up with a higher level of pain because they are used to it. On the sport physiology thing, there was a confused article in the New Scientist years...

The tear film is a very complicated set of layers. If it is not working properly the watery layer will increase to try to protect the eye so. paradoxically, watery eyes can be a symptom of dry eye. Dry eye is one of these things like fatigue. It is very common so easy to dismiss but it can be...

The anhedonia questions could be answered from frustration which is different from depression. My grandchildren were visiting and I was gloriously happy on the one hand (8 months and 20 months, just radiating cuteness) but I quickly became exhausted and it was back to bed a devastating...

You are so right! He did a paper where he said the claims that CFS patients were type A personalities and overachievers were wrong without ever mentioning that it was him and his cronies that were the only ones saying it. His website said that CFS was neurasthenia and that it disappeared for...

I remember the MEAssociation and activists being incensed by this at the time as no one in the community had ever recommended total bed rest. It was a typical case of making an accusation they knew was untrue to bolster their ideas. With there being no internet in those days (for me anyway!) I...

Because aerobic respiration is broken in ME you can't increase fitness in the normal way. It is the mitochondria which drive fitness levels and ours don't work properly. These studies seem quite dubious to me. The number of participants is very low for a start then a drop in activity level of...

'RESULTS: Increased plasma levels of TNF-α in CFS/ME patients almost reached significance compared to healthy controls (p = .056). When studying the CFS/ME and control groups separately, there was a significant correlation between TNF-α and The Hospital Anxiety and Depression Scale (HADS)...

Evolution uses what is to hand so many things have disparate functions. I love the basic biology that we are finding nowadays. Life is so endlessy intricate the reductionism of MUS and BPS approaches is ignorance from ideology.

It seems to me that it isn't the term PEM that is the problem, we could call it "the ME effect", it is the definition of the term. You will never manage to get a complex description of a medical problem into a neat phrase. Diabetics have a "hypo" which is meaningless unless you speak Latin and...

It is all a bit circular as well. I went to my GP and asked if I had MS, then if I had Parkinson's. I described more and more symptoms, mentioning funny feelings I got and pains as I pored through medical texts all in the hope of finding the thing that would be the right clue to get a diagnosis...

from https://fndhope.org/ “FND is due to a problem with the functioning of the nervous system and thought to be the result of the brain’s inability to send and receive signals properly, rather than disease.” So a problem with brain signalling is not a disease? Rules out myasthenia gravis then...

This is an example of the idiotic papers that were published at the time and have lead to a feeling nowadays that the BPS ideas about ME are well founded. It would seem obvious that psychiatric controls would not be likely to attribute their illness to entirely organic causes. They should have...

"Dr. Tremlett and former postdoctoral fellow José Wijnands found that fibromyalgia, a condition involving widespread musculoskeletal pain, was more than three times as common in people who were later diagnosed with MS, and irritable bowel syndrome was almost twice as common. Two other...

One of the main symptoms of my PEM is swollen and painful lymph nodes. This is often accompanied by drenching night sweats and fever dreams. My normal body temperature is low (in hospital every nurse thought the electronic thermometer was broken when the got my result). I am EBV negative and...

It is important to have these letters. In another thread we are discussing the epidemics and enteroviruses. All we have now are the written records; there is no one to ask. These are for the future as well as the good they do today. (And let's face it, they are improving my mental health much...