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As a veteran sufferer I admit it aggravates me that people are willing to believe. But I also think that if it were not for my situation I could understand that it may be (just IMO) because to think of it as a personality thing is to make it first, clearly defined and also within the persons...

Simon Wessely would absolutely not invite a guest for something like this unless he knew in advance that it would only increase his profile and esteem. I expect a great deal of blustering talk about how body in mind mind is body in a way that suggests that people can make themselves ill. It...

This sounds over the top perhaps but I do see it as institutionalised hate speech. If you ever get sick for any reason but a few exceptions it is your fault do not expect any help. This is not social determinants this is personal psychological dressed up as. Social determinants would look...

I'm told a good place to maybe attempt to put pressure on insurance is at their regulatory hearings where premium rates are set. If insurers are looking to increase premiums one could enquire as to where monies were spent paying out/assessing/denying claims. Does anyone know more about this?

I didn't read the whole thing but I read enough. Simon is really not a fan of transparency of any sort. And the whole long yadda yadda about ettiquette, the niceties, the amiable mutual respect. I think that's all that really matters to the man. The polite form must be upheld never mind Rome...

Emily Beardall blocked me on twitter when I suggested that her belief that PACE was a great trial was in fact not the case. I have no idea why she seems so smitten by PACE but she clearly is.

The longer it takes the more obvious it's just spin. Spin takes time. Or at least longer than just investigating & acknowledging the truth.

Speaking for myself I have been guilty of using over general terms rather than being precise. I get frustrated with my Dr or whoever with regards to pwme and instead of naming names it's just directed as a vague rant. I do generally assume that people filter that as not meaning everyone...

@Lucibee Psychologists are generally slagged off here and I think there are a few psychologists around. They haven't left. Casually letting off a little steam is what happens sometimes. I'm sure it was not directed at you just as I'm sure there are editors out there that deserve every word.

Indeed. It becomes awkward but there might need to be a question asking respondents to indicate what criteria/definition they meet for their diagnosis. I know that AfME take a lot of flak from us. It would be so great to be able to believe that AfME are fully and completely on the patients...

The comment about the flu is interesting. I didn't know that but it puts the whole naming think into perspective. Nobody complains that the term Influenza does not properly describe this acute but often serious illness. It's just called what it's called based on the time in which it was named...

I like that he put abundant references at the bottom of the article too. I hope it get's read widely.

To whom should we be directing our concerns about this new and devious plan for subjecting sick people to magical placebos in the name of treatment?

I think that is the level of support that is indicated by this kind of approach. It's not medicine. Mind/body/spirit is all very well but when you are this desperately ill it requires a little something extra. Sounds lovely as a retreat for the mostly well.

Will have to think about it. It may take a while. My brain has decided to work on dial up modem mode while even the slightest sign of thinking on my part sends it into overload.

@Inara It's great that you are researching and finding this info for German ME people. It does make me think that perhaps it's time we find some healthy/semi-healthy people who might do some translating of (for example) the David Tuller blogs on Virology and other info. I don't know if this...

Thanks @Kalliope for the lengthy response. Also, as to @FreeSarah 's comment the PP comment in question comes from here: https://bit.ly/2KTJNvN ETA: I think it's important for us to stay aware of what these BPS people are up to and to have a record of what they say &shorten URL

Holmes was applying that logic to human actions not human biology. There's a difference. Biology is still little understood but it does not act irrationally. Pseudo-science always takes sciency sounding words and uses them to over-simplify something that isn't and to mean something more than...

If you have some documented quotes to share that might prove useful.

PDF copy of the report on MEpedia http://me-pedia.org/images/7/71/1996_UK_Chronic_Fatigue_Syndrome_report.pdf