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  1. Snowdrop

    Blog: Clark Ellis, "Which heart rate monitor for ME/CFS?"

    Not sure I found the right thread but just wanted to pipe in that I was using a HRM-- a Garmin Vivo. It worked well for the very basic things I wanted from it but now after 18 months or so it seems the USB charging cable has died on me. Just providing the info for feedback on models.
  2. Snowdrop

    UK: Labour Party are asking "What would you like to ask Theresa May?"

    Perhaps pointing out that there is no controversy around ME. There is only contrived controversy from those who are heavily invested in not subscribing to reality. I get the feeling that ME (not exclusively but especially) in the UK is seen as controversial. And therefore no one is willing to...
  3. Snowdrop

    Janet Dafoe - The Whitney Plea

    I really don't think anyone here would censure such a gesture of reaching out to communicate as a private personal choice. Certainly that's not a good thing to do. It would horrify me. But in the context of using it as a universal or widely shared symbolic gesture I'd have to agree that...
  4. Snowdrop

    World ME Alliance, was previously IAFME: International Alliance for ME

    My brain does not function very well but I would have thought there would be a more clear way to express that if that's the case.
  5. Snowdrop

    World ME Alliance, was previously IAFME: International Alliance for ME

    I find this statement odd: Sitting at the heart of our international advocacy work is the ethical principle that access to biomedical care must not be restricted for anyone who has a significant possibility of needing it. It seems a bit overly cautious and slightly vague. I may simply have...
  6. Snowdrop

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    There's a certain irony when someone chooses a profession -- psychology -- where your everyday work is about attending to psychological matters and then you go on to accuse others of a psychological issue via over-attending to bodily sensations. One could accuse them of perhaps attending too...
  7. Snowdrop

    Prime Minister Trudeau apologizes

    I'm glad to hear you're still managing so far. The big effort near concluding. I'd like to add that although I cannot attend my daughter, it just worked out this way, arrives for a visit here on the 12th and she will wear a MillionsMissing t-shirt from her home in the UK to on the train then...
  8. Snowdrop

    Prime Minister Trudeau apologizes

    Thanks for this @ScottTriGuy I hope you take care of yourself though all this--you seem to have been quite busy of late. :hug:
  9. Snowdrop

    A unifying theory for cognitive abnormalities in functional neurological disorders, Fibromyalgia and CFS (2018), Mark J Edwards et al.

    @adambeyoncelowe It's always good (if a bit nauseating) to know what this crowd is up to. Although I'm at the point where it's not enough to keep track of Edwards et al I'd like to point out, if you go to the bottom of the page you'll see that their funding came from Wellcome Trust, the MRC...
  10. Snowdrop

    1st ME/CFS Canadian Collaborative Conference

    When I here about or read this kind of thing I'm never quite sure which direction I want to go after first. On the one hand it seems like one of those situations where the person is a hammer and every person that comes through their life is a nail or at least a potential nail. It's not a bad...
  11. Snowdrop

    1st ME/CFS Canadian Collaborative Conference

    It presents as quite infantile. Who does she think she's talking to -- 3 year olds. Embarrassing.
  12. Snowdrop

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Sounds good until you go back and remember earlier days when the 'balance' across BBC reporting was all BPS all the time and people speaking up against the PACE trial were militants/nasty people/crazy etc
  13. Snowdrop

    Guardian piece on ME by Nick Duerden, mentions PACE 'controversy', includes quote from Chalder. Bit of a nothing article.

    I'm not so enthusiastic. At this point in time we've come a long way. Elsewhere in the media things have changed quite a bit. Having a disingenuous Chalder quote to me signals a cover up for the BPS crowd. They're going to use the Guardian to remake history for themselves. And again, I know...
  14. Snowdrop

    1st ME/CFS Canadian Collaborative Conference

    Done. I'm curious though. I had thought there were a few suspect people (central sensitisation theorists) who were to present their ideas. Haven't heard anything but reports of real science so far. Which is very good. I am relieved.
  15. Snowdrop

    1st ME/CFS Canadian Collaborative Conference

    I look forward to having these various findings explained in more detail.
  16. Snowdrop

    1st ME/CFS Canadian Collaborative Conference

    Looks like there are lots of interesting findings being shared.
  17. Snowdrop

    Reframing psychiatric/psychological illness

    Or that everything the person says is not to be believed. They are reduced to knowing nothing about themselves and their experience. It's the stuff of nightmares.
  18. Snowdrop

    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    @Esther12 I wasn't aware (or didn't remember) that this distinction was made back in 2011. It puts the tweets in a different context then. This makes me wonder then why did they bother with the subset of ME under different criteria? Was it so they could point to that subset responding...
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