Search results

Hi @Kafka I've never read this so don't know how much it will help but there's this: http://www.stonebird.co.uk/Care Sheets.pdf and there might be something here: http://www.25megroup.org/info_Carers.html ETA: also found this but it requires payment to access...

That's really good news. Thanks Webdog for pursuing this.

I am coming late to this thread and have not read all posts (skimmed) I will try and stay on point although the conversation may have drifted elsewhere. I think teaching nutrition ought to happen in a simple way in grade school and then as a module in both biology and chemistry (with different...

I expect that they are. But while I have no direct knowledge I expect that they may have other sources of funding too and that it is that funding that might be problematic. I do have one (sadly already vague) bit of knowledge of other funding -- it was announced here somewhere 50,000 pounds...

Do you actually consider that a likely possibility? I guess different styles come down to assessing probabilities. I don't consider it likely at all. I think judges (and certainly any open minded person)can put things into context and come up with what is reasonable or not.

It's beginning to look to me very much like a charity that wants to be relevant to the patient population and do right by them but is also very much afraid to rock the boat in the UK. Again, it could be a who funds them issue. Certainly whatever it (might) be they won't feel at liberty to...

I believe in 2015 (and I expect since) SC pay was between 70-80 thousand pounds. I get this figure from the end of year 2015 trustee report and accounts under (pg 28) Staff Costs -- subheading number of employees whose emoluments amount for the purpose of taxation to over 60 thousand pounds -...

Or two hashtags that are short and make the point: #ImWithTuller #biosci4ME

here https://undark.org/article/five-questions-lydia-kang/ is a link to an article in undark about the book in the thread title. I thought it might be of interest to someone here and maybe there might be someone here who might want to read the book.

And this has always been a big problem that this community is up against. When a person who is ill and suffering goes to a Dr and gets a diagnosis the person may well have zero knowledge of that illness and accept the Dr's conclusions. As a result the powers that be in the UK (and I presume...

@dave30th Well I thought you behaved admirably. And I thank you.

So all of David Tuller's work has/will come to naught because he made a snarky comment about Lloyd. Good to know. Maybe you can volunteer to engage with these researchers. We wait with baited breath. ETA: sorry just had to come back and add that DT has done so much for this community and...

Science requires debate/discussion. @Action for M.E. are still around whether PwME like it or not and so IMO they are very welcome to be here. With the caveat that joining and then remaining silent and not engaging with other members is quite creepy. In other words . . . Would like to see...

Probably got characterised as a bomb threat. Tick Tock.

@adreno Can you describe your use of Mutaflor; what dose you used and how long before symptoms abated and what type of symptoms if you don't mind sharing? I'd be interested. ETA: didn't see above post.

While it doesn't include ME there is actually a book on the subject: http://ca.wiley.com/WileyCDA/WileyTitle/productCd-0470890657.html Masquerading symptoms: Uncovering Physical Illnesses that present as psychological problems

Is there any record of the panel discussion?

Maybe one day when we're more settled here we can come up with a system that scores these things. For now I'll volunteer the pink JPM for a two thumbs down score. I expect with the situation we find ourselves in (although rapidly changing thankfully) that there might need to be a score of...

Is it normal for the BBC site to not take comments? Also, they provide Ms Lipman's twitter address if anyone wants to thank her.

I found this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3099256/ Don't know if it's helpful but thought it might be.