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  1. Snowdrop

    We’re Incentivizing Bad Science (Scientific American)

    Always good to see someone who wants to bring to light the issues around research integrity. Two things though: It seemed to me there was a veiled accusation against open access. It could just be that the opinion was that the publishing incentive/financing needs fixing but there was no real...
  2. Snowdrop

    "The motivations behind science denial", 2019, McLintic (CFS mentioned)

    Just IMO, I don't think we are dealing with rational thinking or behaviour from the people who still insist on spouting nonsense on this subject. There is ample opportunity and means to properly evaluate and understand this issue around what PwME are saying regarding the PACE trial and their...
  3. Snowdrop

    Psychology Today blog - The Dark Side of Social Media Activism in Science, 2019, S. Camarata

    How convenient to not have any knowledge with which to assess the PACE trial while calling for more of the same.
  4. Snowdrop

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    Or it could also be looked at in another way. My being ill with ME, considering the symptoms I experience as a result--they affect the way I respond to stress. In other words, to put it differently--if I were not sick with this my response to stress would be very different as a healthy person.
  5. Snowdrop

    SEN Magazine: "ME and you" by Mary-Jane Willows

    I fail to understand why physical attendance at the school is so necessary. Wouldn't it be more productive to have a distance learning package that can be delivered by internet. There are already a number of children who use this (at least here in Canada and I would imagine elsewhere). And...
  6. Snowdrop

    Article: Canada - After long-awaited recognition, research begins in earnest around chronic fatigue | CBC News Oct 2019

    Yes, agreed. My statement suggested that the author has some control but I agree this is usually not the case. I'd still like to fathom why editors need to be so economical with being precise. As I said, it amounts to being careless and demeaning about the whole group of people they're...
  7. Snowdrop

    NPR: The Placebo Effect Works And You Can Catch It From Your Doctor

    Link to the NPR story on the Nature paper here
  8. Snowdrop

    Article: Canada - After long-awaited recognition, research begins in earnest around chronic fatigue | CBC News Oct 2019

    Good to see a reasonable article on ME. Why the title though? After all all the way through the article they use the term ME. Strange. Also, now that there seems to be reporting from Canada I am wondering where does a journalist go to get their info for an article. Any insights anyone? The...
  9. Snowdrop

    Lancet photo competition for “original photographs that bring a fresh focus to a health story” -potential opportunity for awareness?

    Just as a guide, here is a link to previous winners: https://rhdaction.org/news/health-stories-focus-lancet-highlights-2018-photography-competition-open-submissions
  10. Snowdrop

    Cochrane review: Homeopathy for treatment of irritable bowel syndrome, 2019, Peckham et al

    Also, this was originally reviewed in 2013. There was an update. Thus the current date.
  11. Snowdrop

    Cochrane review: Homeopathy for treatment of irritable bowel syndrome, 2019, Peckham et al

    I think Cochrane urgently need an intervention. Addiction to magic?
  12. Snowdrop

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Well that's disheartening. Yes, AfME have changed. The past is the past. I didn't find any of the current criticisms of AfME here on this thread to be mean spirited. On the other hand I think the criticisms weren't beating around the bush either. AfME is a charity; with a mission...
  13. Snowdrop

    2019 Cochrane Methods Symposium: Developing robust review protocols with increasingly diverse evidence, 21st October, Chile

    I anticipate them having a lovely time in Chile. I expect the whole point of the exercise (conference) is merely to write off the expense of a nice travel destination . As for learning anything useful on the subject of developing robust protocols for the type of 'evidence' we're used to being...
  14. Snowdrop

    SMC: Advice for Researchers Experiencing Harassment

    Thanks for the effort Barry. At the moment I can't get PDF's to appear either though. I am saving toward getting a new MAC, hopefully some time in the new year this all won't be an issue.
  15. Snowdrop

    SMC: Advice for Researchers Experiencing Harassment

    I can't see the tweet this is based on but based on Barry's comment it would seem that this group of strategies has been around a while and is just now being put out there. The irony of this is that the problem the strategies address is of their own making (SMC). When it suits them they are...
  16. Snowdrop

    “Investigating ME/CFS at the intersection of the nervous and immune systems.” Speaker: Dr. Michael VanElzakker Oct 26 2019

    For anyone who is in the same position as me and only gets a blue bird silhouette instead of a tweet message: https://www.massmecfs.org/news/30-news/730-annual-event-10-26-2019-dr-michael-vanelzakker Dr. VanElzakker will discuss some challenges and opportunities in using brain scans to study...
  17. Snowdrop

    SMC: Advice for Researchers Experiencing Harassment

    That link seems to be broken for me.
  18. Snowdrop

    Symptom-based stratification of patients with primary Sjögren's syndrome [...] (2019) Tarn et al. The Lancet

    Scanning this made me realise just how depressing (in the colloquial sense) it is to view a steady diet of the pure theoretical bullshit that is the BPS 'research'. It's refreshing beyond words to view research that actually seeks to truly solve a health issue. This is clearly actual science...
  19. Snowdrop

    Researchers find lead in Turmeric (Physics.Org)

    Not exactly new news but I was using some Turmeric today and was reminded that I had read about contamination previously. And because I consider this issue larger than just Turmeric. I call it the lamppost problem. We are bombarded with 'good news' info on so many ingested substances that...
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