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  1. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Copied from this thread Huffington Post UK: Coronavirus Is Leaving People With Serious Fatigue - What Can You Do About It? Interviews with professor Paul Garner from Liverpool School of Tropical Medicine and dr. Charles Shepherd from the ME Association on Covid-19, post viral fatigue and...
  2. Kalliope

    ME Awareness day / week / month and #MillionsMissing May 2020

    Great idea for a thread, @Michiel Tack ! The Norwegian ME Association is organising a webinar 12th of May with prof. Ola D. Saugstad tomorrow at 14.00. The title is News about ME in the age of a pandemic (ME-nytt i en pandemitid). ETA: Removed a lecture by MD and researcher Anita Kåss, as it...
  3. Kalliope

    News from Scandinavia

    I hope it is because they are expanding and not that someone is leaving and needs to be replaced.
  4. Kalliope

    Cancer-related fatigue and functional impairment – Towards an understanding of cognitive and behavioural factors: Hughes, Chalder et al May 2020

    Just out of curiosity, I'd like to see what their image of a patient they'd define as not having pathological behaviour is.. Edited for clarity.
  5. Kalliope

    Cancer-related fatigue and functional impairment – Towards an understanding of cognitive and behavioural factors: Hughes, Chalder et al May 2020

    according to Wyller fatigue post mono may be predicted by having a good memory :rolleyes: ETA: I should be fine, then..
  6. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Nina E. Steinkopf has an opinion piece in a medical newspaper today about this study. She draws parallels to a Lightning Process-study that might take place which Wyller will be part of. She also calls for biomedical research being prioritised from now on. The result of the study was that the...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Article today in Berliner Zeitung - Corona könnte krankhaft - chronisches Erschöpfungssyndrom auslösen google translation: Corona could trigger disease - Chronic Fatigue Syndrome Article has a summary of recent research and quotes from Carmen Scheibenbogen. Approximately 17 million people...
  8. Kalliope

    News from Scandinavia

    Henrik Vogt has been active on social media lately where he warns doctors against exaggerating the dangers and uncertainty surrounding the corona virus. He's referred to this JAMA article The Iatrogenic Potential of the Physician's Words which among other states "some of the information that...
  9. Kalliope

    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    Reposted: Trial By Error: Valerie Eliot Smith on COIVD-19, ME and Legal Repercussions Valerie routinely posts her sharp commentary about legal issues and ME at her blog, Law and Health. Earlier this week, she posted a blog about the impact of the pandemic on the current guideline review that...
  10. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Nina E. Steinkopf has written a thorough walkthrough of the study in this blog post In a Norwegian study, young people with chronic fatigue were treated with music therapy. The result is an article full of contradictions and illogical conclusions, which essentially disproves the researchers'...
  11. Kalliope

    News from Scandinavia

    The Norwegian Minister of Health and Care Services, Bent Høie, recently gave a speech addressed to the youth thanking them for all the sacrifices they've given, everything they've had to put on hold, during the corona crisis. He understands that missing out on things as a teenager is something...
  12. Kalliope

    Review of the Quality Control Checks Performed by Current Genome-Wide and Targeted-Genome Association Studies on ME/CFS, 2020, Sepulveda et al

    Provisionally accepted opinion article in frontiers in Pediatrics - Paediatric Neurology Review of the Quality Control Checks Performed by Current Genome-Wide and Targeted-Genome Association Studies on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Nuno Sepulveda, Anna D. Grabowski...
  13. Kalliope

    Judy Mikovits

    There is now a petition on Avaaz for health care workers asking social media platforms to - correct the record on health misinformation - detox the algorithms that decide what people see The tsunami of false and misleading content about the coronavirus is not an isolated outbreak of...
  14. Kalliope

    Judy Mikovits

    Brian Vastag, a former science reporter at The Washington Post who previously covered the retraction of Mikovits' paper and has ME/CFS, said his “stomach sank” when he saw the video go viral amongst friends and family members on Facebook on Thursday morning. Vastag said people in the ME/CFS...
  15. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    NewStatesman - Scientists and doctors are grappling to understand the fiendish complexity of Covid-19 - by Phil Whitaker My longest-running patient has been intermittently unwell for over seven weeks now. At present, we don’t know whether these people represent an ongoing infection risk...
  16. Kalliope

    MSD Manual (US): Chronic fatigue syndrome - updated Apr 2020 and Sept. 2021

    Trial by Error: Merck Manual Still Disseminates GET/CBT Advice The graded exercise therapy/cognitive behavior therapy treatment paradigm for chronic fatigue syndrome—also imposed on those diagnosed with myalgic encephalomyelitis, CFS/ME, ME/CFS, and other variants–is like the undead. This...
  17. Kalliope

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Translation into English of this article on the study. Published by the Kavli Trust who supports Fluge and Mella's ME research team at Haukeland University Hospital and the University in Bergen. Promising results from trial of cancer drug in ME/CFS With support from Kavli Trust, the ME/CFS...
  18. Kalliope

    Judy Mikovits

    Retraction Watch just published a post called Who is Judy Mikovits? with a collection of their previous posts about her. Over the past few days, we’ve noticed a spike in traffic — sometimes so large that it crashes our site — to older posts about Judy Mikovits. It appears that Mikovits is once...
  19. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    As of today there is a petition by "Victor" against the study. The petition is directed towards the Regional Committees for Medical and Health Research Ethics (REK). We who sign request that REK look carefully at the following methodological objections related to "project fatigue" that Lighting...
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