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Nobel Prize in Medicine won by Harvey J. Alter, Michael Houghton and Charles M. Rice for discovery of Hepatitis C Some of you may recognize Harvey Alter who was involved in ME research in the XMRV times, and Michael Houghton from Alberta, Canada was also involved in ME research...

When i was diagnosed with EBV i have asked my dr for anti-virals and she said no. Almost 12 years ago.

So here in Canada, 110 millions for COVID has been allocated for research - most of it would be for vaccine development, infection control, and bio research. it would be fair to think that some of this research money or additional money will go to Long-COVID, but not to ME. In my view...

The one thing i’d consider is how much free time you have every day, whether your energy fluctuates, What you really want to do (make a priority list) and test your response to the activity, whether it makes you crash or not. Monitoring would be important to ensure you are not ever exerting in...

So in the hypothetical that a program already exists for ME patients, should there be a separate program for Long-COVID patients? This is in the context of socialized medicine where patients with ME are treated with CBT and symptom management. Why or why not? Please discuss.

Thank you for receiving and sharing the feedback @Andy. Nothing is ever perfect, and if it’s the only problem this team is encountering, it will just be peachy!

I deleted my previous post. I received the following message yesterday, but no link to survey. Could it be because i am out of country? Edit: from post above, yes, because i am not from UK. It may be necessary to mention UK residents only. Thanks again for signing up to receive updates on...

Abstract In a recent paper, Sharpe and Greco (2019) argue that some clinical conditions, such as chronic fatigue syndrome (sometimes called myalgic encephalomyelitis), should be treated by altering the patient's experience and response to symptoms without necessarily searching for an underlying...

@MSEsperanza your tags are fine, and i could never have known english is your second language!

Not sure why you would not want to promote Ernst’s blog, as i tend to agree with him.

Merged thread As Their Numbers Grow, COVID-19 “Long Haulers” Stump Experts This is a journalistic piece regarding Long COVID which discusses symptoms and experiences of patients living with Long-COVID including Dr Mady Hornig who researches ME as well. The article also includes the issue of...

i wish we could remove the ‘chronic illness’ status by actually finding what the heck is wrong with us, and how to make it go away.

The paper: The FUTUREPAIN study: Validating a questionnaire to predict the probability of having chronic pain 7-10 years into the future Abstract: Objectives: The FUTUREPAIN study develops a short general-purpose questionnaire, based on the biopsychosocial model, to predict the probability...

I am a bit skeptical about this. https://publichealth.berkeley.edu/news-media/research-highlights/new-screening-tool-may-predict-chronic-pain-before-it-starts/

Will it ever end?

Best wishes @Rosie, will be thinking of you.

I have to be honest, the technicality of this paper is way beyond me, but i have a few questions: 1) does their work warrant further study in this specific topic, what would it be and where would that lead? 2) if the clonal expansion leads to suggestion of autoimmunity, would this be grounds to...

I think that things are happening behind the scenes, but good research takes time and researchers cannot talk about it until it is published.

Some of the physicians who are part of this group believe it, and teach that to their patients as part of the CBT curriculum.

Clinicaltrial.gov notice about this trial states this: Dr Younger has been quiet as of late. Hopefully it means he is near publishing. The recent IACFSME conference had a presenter that made mention that LDN had not so much effect on fatigue, but was helpful for pain. She represented the...