I feel similarly wrt onset being linked to not resting sufficiently during a trigger infection or otherwise. For me, the same set of acute symptoms occurred twice with a gap of several months between. The first time, I recovered within days. The second, I tried to get back to work and normal...
Excellent document, thank you very much @Jonathan Edwards. I would just add to @Andy's observation my own, which is that on p.3 you refer to the "Increasing Access to Psychological Therapies" programme, where in fact it is called "Improving Access to Psychological Therapies". It's a tiny gripe.
As probably many are aware, at one time Professor Findley was set to run his own pilot on the Lightning Process, and had developed a LP analogue with co-workers, called neurobehavioural training, for which a dedicated website was developed but apparently no longer exists. There was also anecdote...
But also I think the take-home is that nothing about LP has ever sounded like pacing. Rather, it's the antithesis of pacing, and Parker has put in print that pacing is "simply not very effective in producing rapid, effective and lasting recovery". So to suggest now that LP is part pacing...
From the paper:
"The standard models employed are pacing,
CBT and GET. These models primarily advocate gradual change through small step, incremental usage and the physiological effects of exercise (Cox, Ludlam, Mason, Wagner, & Sharpe, 2004). The CBT elements often add coping strategies for...
If no other question, I would ask myself why a Brit was submitting to a Romanian journal.
Eta:
Phil Parker, DO*i, Jacqui Aston, BSc (Hons)**, Fiona Finch, MSc DipCOT***
*School of Psychology, London Metropolitan University, UK, **London, UK, ***Bath, UK
"An evaluation of the LP’s conceptualisation of the aetiology of the disease and the hypothesis behind its approach was undertaken, through a review of the literature and semi-structured interviews with the programme’s original researcher (this paper’s lead author)."
I thought about what I...
The First-tier Tribunal upheld the Information Commissioner's decision, so it was QMUL's appeal (that was dismissed.) But the inference is that the Tribunal's decision was anomalous; given it was upholding the Decision Notice, it clearly wasn't.
I agree with this. PEM should be given more emphasis than fatigue, which as @duncan notes is part of the constellation of symptoms, but isn't necessarily a primary or defining one. However, the term "PEM" is a bit like CFS in that it is also belittling.
From the Shorter OED:
It might not be...
As you are answering questions on the forum today @Action for M.E., would you be able to confirm whether Action for ME has been a member or attended meetings of the Expert Advisory Group for the joint Work and Health Unit, and if so, whether it has raised any objection with the WHU that ME/CFS...
Tying in with the HOME study, from the Technical Guidance for Refreshing Plans 2018/19 Annex B: Information on Quality Premium:
"Proportion of people accessing IAPT services aged 65+; to increase to at least 50% of the proportion of adults aged 65+ in the local population or by at least 33%...
There's a serious problem with the Government mandating a recovery rate of 50 per cent for relevant disorders, mandating incentivised outcomes-based payment systems for providers, and then expecting service claims of "reliable
recovery" rates approaching or exceeding that number to be taken even...
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