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  1. Andy

    Pulse Today ("the leading publication for GPs in the UK"): "Long Covid: Explaining the unexplainable?"

    "Long Covid is affecting 2 million patients in the UK, and GPs are struggling to treat them. But the volume of patients may prompt more research into treatment for medically unexplained symptoms. Emma Wilkinson reports While the world remained in lockdown in the early waves of the pandemic and...
  2. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    For those asked to donate a sample, spit kits are now being sent out. "#DecodeME participants also asked for a DNA sample will receive a spit kit in the post soon. It may take some time for the many kits to be sent out. Don’t worry as they are on their way. If you have received yours...
  3. Andy

    Closed UK: DecodeME updates, was recruitment thread.

    But your answers to the questionnaire still count. Thank you for taking part.
  4. Andy

    Neurogenesis is disrupted in human hippocampal progenitor cells upon exposure to serum samples from hospitalized COVID-19 patients 2022 Borsini et al

    Full title: Neurogenesis is disrupted in human hippocampal progenitor cells upon exposure to serum samples from hospitalized COVID-19 patients with neurological symptoms Abstract Coronavirus disease 2019 (COVID-19), represents an enormous new threat to our healthcare system and particularly to...
  5. Andy

    Gender differences in risk factors and psychosocial functioning in children with psychogenic nonepileptic seizures 2022 Yeom et al

    Highlights Female predominates in childhood-onset psychogenic nonepileptic seizures (PNES). Early life trauma, specifically sexual abuse, was common in girls with PNES. Learning disability was a significant contributing factor in boys with PNES. Girls were more likely to experience suicidal...
  6. Andy

    Preliminary Guidelines for the Clinical Evaluation and Management of Long COVID 2022 Kim et al

    Abstract Long-lasting coronavirus disease 2019 (COVID-19) symptoms beyond 12 weeks, the so-called ‘long COVID’ have been increasingly reported worldwide. Long COVID can be manifested in various forms, and there is an increasing demand for proper assessment and management. However, it is...
  7. Andy

    When COVID does not heal: post-COVID courses with fatigue and exercise intolerance 2022 Renz-Polster and Scheibenbogen

    Post-COVID-Syndrome consists of several pathobiologically different entities, ranging from damage to specific organs to new onset autoimmune diseases. This article focuses on post-COVID courses with the leading symptoms of fatigue and exercise intolerance. This category is also known from other...
  8. Andy

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    $5,755 raised, 26 days left. https://crowdfund.berkeley.edu/project/33528
  9. Andy

    Pain relief and sedation with ME - any issues to be aware of?

    My personal experience, which is four or five procedures with sedation in the last five years, is that as far as I can tell I had no adverse effects.
  10. Andy

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    We've seen the 'everybody else is talking about it so where's the harm' type of argument before and for people who are in a position of potential influence it should be no defence at all, they should be exhibiting a reasonable amount of self restraint for the good of the patient population that...
  11. Andy

    Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, 2022. New survey ends 30/8/24

    "Despite the higher prevalence rate in women than in men of many neurological disorders (e.g. multiple sclerosis, migraine, Alzheimer’s disease), gender stereotypes can have a negative impact, leading to under-diagnosis, misdiagnosis and delayed treatment. Furthermore, while women experience...
  12. Andy

    USA: The RECOVER Initiative - Long Covid research

    This was published on the NIH's Director's blog. "Understanding Long-Term COVID-19 Symptoms and Enhancing Recovery We are in the third year of the COVID-19 pandemic, and across the world, most restrictions have lifted, and society is trying to get back to “normal.” But for many...
  13. Andy

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    And in doing so endorses the use of this as a treatment. To me this is seriously problematic on an ethical level and something that we have seen before with various people promoting, or seeming to promote, various 'treatments' before there is good evidence that they are safe and actually work.
  14. Andy

    Can exercise attenuate the negative effects of long COVID syndrome on brain health? 2022 Teo and Goodwill

    The impetus for many governments globally to treat the novel coronavirus (COVID-19) as an endemic warrant more research into the prevention, and management of long COVID syndrome (LCS). Whilst the data on LCS remains scarce, reports suggest a large proportion of recovered individuals will...
  15. Andy

    Cognitive, emotional, physical, and behavioral stress-related symptoms and coping strategies among university students during... 2022 Attia et al

    Full title: Cognitive, emotional, physical, and behavioral stress-related symptoms and coping strategies among university students during the third wave of COVID-19 pandemic Background: Stress is manifested by different physical, cognitive, emotional, and behavioral stress-related symptoms, and...
  16. Andy

    Trial By Error: What I’ve Read Recently–Yong, Jason, Prior & Lowenstein, & Eliot Smith

    "Almost seven years ago—in October, 2015–Virology Blog published my 15,000-word investigation of the arguably fraudulent PACE trial. (Thanks, Professor Racaniello!). At the time, no one but patients and a few clinicians cared about ME/CFS—at that point mostly called chronic fatigue syndrome...
  17. Andy

    Long Covid, a great imitator of the 21th century 2022 Goldman

    "Given the heterogeneity of long Covid and the poor knowledge on its pathogenesis, it is not surprising that its treatment is merely symptomatic. Pain medications including opioids, antidepressant drugs and anxiolytic drugs are frequently used (10), often without adequate surveillance. Although...
  18. Andy

    Long Covid, a great imitator of the 21th century 2022 Goldman

    Introduction As a syndrome which can take multiple forms and mimic different diseases, long Covid can be considered as a novel “Great Imitator,” a nickname attributed to syphilis more than a century ago (1). Indeed, there is a body of evidence that infection with SARS-CoV-2 can result in...
  19. Andy

    Cerebral gray matter volume correlates with fatigue and varies between desk workers and non-desk workers 2022 Putra et al

    Chronic fatigue syndrome (CFS), a clinical entity of chronic fatigue, has been associated with a decrease in regional gray matter volume (rGMV). In this study targeting a large number of healthy middle-aged individuals without CFS, the relationship between fatigue perception and rGMV was...
  20. Andy

    Open Protocol: Multimodal MRI of myalgic encephalomyelitis/chronic fatigue syndrome: A cross-sectional neuroimaging study 2022 Shan et al

    Full title: Multimodal MRI of myalgic encephalomyelitis/chronic fatigue syndrome: A cross-sectional neuroimaging study toward its neuropathophysiology and diagnosis Introduction: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is a debilitating illness affecting up to 24 million...
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