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Press release: https://www.ncl.ac.uk/press/articles/latest/2023/05/longcovidfatigue/

The largest media outlet that has used it seems to be the Independent newspaper in the UK. Put the following into a search engine and you should find most or all articles that mention it: "Dr Anand Patel" "Covid has made ME more" A version that is freely available is here...

(Germany) “Bundestag Health Committee supports ME/CFS care and research” [on May 10] https://www.meresearch.org.uk/bundestag-health-committee-supports-me-cfs-care-and-research/

I only skimmed it but I dislike the public being told lots of doctors don’t believe in it and the like. As that can lead other people to doubt it, I feel.

From: Dr. Marc-Alexander Fluks May 11, the University Leuven 'Continuing Education Programme' Pentalfa in Belgium will organize a free online symposium (in Dutch) on Post-Covid, including ME/CFS, for MDs. Date: May 11, 2023 Time: 18:00 UTC URL: http://www.pentalfa.be WebTV...

https://www.miningjournal.net/life/2023/05/health-matters-52/ DR. CONWAY MCLEAN Journal columnist Looks a bit annoying on a quick skim

The fact that an ME charity funded the development may mean it will be harder to argue they are less suitable in the future. ETA: And it’s likely the MEA will say something positive about them when they are published. It’s somewhat natural for a charity to want to promote their work. It will...

Saturday, May 20: Caregiver Support Call (for caregivers of people with ME (Mylagic Encephalomeylitis), Long Covid and Associated Conditions) 3:30 PM EDT/8:30 PM Great Britain & Ireland Find the time in your time zone here...

May 18 #MEACTION GEORGIA SUPPORT CALL https://www.meaction.net/event/meaction-georgia/2023-05-18/ People around the world are welcome. 1 PM EDT/6 PM in Great Britain & Ireland Find the time in your time zone here...

Lunch & Learn – Virtual Event organised by the Bateman Horne Center Thursday May 18th Topic: Making Household Tasks Easier 11:30 am MDT/6:30 PM in Great Britain & Ireland Find the time in your time zone here...

This two-page letter (or one page if you exclude the references) might be worth circulating https://mecfscliniciancoalition.org/ MESSAGE FROM THE COALITION ON LONG COVID: Since 2020, we’ve been seeing people with Long COVID whose symptoms overlap with ME/CFS. We recommend you consider ME/CFS...

Topic for this (May 16) meeting: Crash Survival and Pacing Free, professionally-facilitated online support group on Tuesday, May 16 Time: 3 PM EST/8 PM in Great Britain & Ireland Find the time in your time zone here...

I wasn’t sure where to post this. “Will, who plays off a handicap of five, is set to play 100 holes at the Bridport and West Dorset Golf Course on Wednesday, 31st May for two great causes – the ME Association’s Ramsay Research Fund and Opal Webster-Philp’s South Coast-based ME/CFS Alliance.”...

I can’t remember whether this information re: HANDI guidelines is new or not

I hope someone does a trial of a lower dose. Not sure how comfortable I would be taking that dosage (though I’m no melatonin expert).

Another study by the same Dutch team found: “Table 3 shows the baseline characteristics of the ME/CFS patients with a normal heart rate and blood pressure response and ME/CFS patients with POTS. Patients with POTS had a shorter duration of disease and were younger (both p<0.0001).”...

Another group also found POTS prevalence decreased with time in long Covid: “Long-Haul COVID Patients: Prevalence of POTS Are Reduced but Cerebral Blood Flow Abnormalities Remain Abnormal with Longer Disease Duration” https://pubmed.ncbi.nlm.nih.gov/36292552/

Social economic status can change from having ME/CFS, much more often going lower than higher due to decreased economic productivity from the patient working less or not at all and other household members often having to do unpaid labour. This effect could be larger than other conditions on...

Thread on the US Household Pulse Survey here US: Long Covid prevalence from Household Pulse Survey

Emerge Australia press release https://mailchi.mp/emerge.org.au/stop-rest-pace-march23-1339285