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  1. Sly Saint

    United Kingdom: Isle of Man ME/CFS and Long Covid services (Manx, ME Support IOM)

    Merged thread 'Listening exercise' for people with Long Covid https://www.manxradio.com/news/isle-of-man-news/listening-exercise-for-people-with-long-covid/
  2. Sly Saint

    Over-exercising: How to find out if you're becoming addicted to working out

    https://www.bbc.co.uk/programmes/articles/17LBjq9XdSyw978CM75W7lG/over-exercising-how-to-find-out-if-youre-becoming-addicted-to-working-out
  3. Sly Saint

    Getting a Head Start on Treating Long COVID, Infection Control Today interview with Jaime Seltzer of #MEAction

    https://www.infectioncontroltoday.com/view/getting-a-head-start-on-treating-long-covid
  4. Sly Saint

    United Kingdom: Independent SAGE

    I got the impression from the initial response to the question that ME is a bit of a 'dirty secret' that no one really wants to talk about.
  5. Andy

    UK parliamentary petition: Fund research into any relationship between microclots and long Covid and ME

    Moved from this thread: The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS ________________ UK parliamentary petition: Fund research into any relationship between microclots and long Covid and ME https://petition.parliament.uk/petitions/605679 At time of...
  6. Sly Saint

    Request for information regarding comparisons with ME/CFS and Long Covid

    well those are two common ME symptoms for starters.
  7. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Tan Dhesi Shadow Minister (Transport) To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve NHS treatment and support for people with (a) ME, (b) chronic fatigue syndrome and (c) other chronic long-term pain conditions. Tweet Share Hansard...
  8. Sly Saint

    UK: Physios for ME

    @PhysiosforME don't know if you are aware of this group https://purephysiotherapy.co.uk/ they've posted a video on Youtube "Find out more about ME chronic fatigue, what causes it, common symptoms and how to treat it" https://www.youtube.com/watch?v=neRMbeQn4_s
  9. Sly Saint

    Review of the Midbrain Ascending Arousal Network Nuclei and Implications for (ME/CFS), Gulf War Illness (GWI) and (PEM), 2022, Baraniuk

    Review of the Midbrain Ascending Arousal Network Nuclei and Implications for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Gulf War Illness (GWI) and Postexertional Malaise (PEM) Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS and Gulf War Illness (GWI) share...
  10. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Jim Shannon Shadow DUP Spokesperson (Human Rights), Shadow DUP Spokesperson (Health) To ask the Secretary of State for Health and Social Care, with reference to NICE's updated guidance on exercise for sufferers of ME, whether his Department has plans to promote that information to health and...
  11. Sly Saint

    BBC article: Specialist mental health unit failures exposed by patients

    https://www.bbc.co.uk/news/uk-59964353
  12. Sly Saint

    United Kingdom: Action for ME (AfME) news

    agree, and anyway I don't see why they have to say what the 'treatments' are; I don't think it's commonly done for other illnesses. and for that matter, if they did their homework they would find out that those are the current 'treatments' for almost all chronic diseases now in the UK.
  13. Sly Saint

    United Kingdom: Action for ME (AfME) news

    https://www.thescottishsun.co.uk/tv/8288579/celebrity-catchphrase-in-tears-mark-bonnar-win/
  14. Sly Saint

    Diagnosis and Treatment of Pain in Small Fiber Neuropathy, 2011, Hovaguimian & Gibbons

    Oldish paper but interesting. Abstract Small fiber neuropathy manifests in a variety of different diseases and often results in symptoms of burning pain, shooting pain, allodynia, and hyperesthesia. Diagnosis of small fiber neuropathy is determined primarily by the history and physical exam, but...
  15. Sly Saint

    Psychological Predictors of Self-reported COVID-19 Outcomes: Results From a Prospective Cohort Study, 2022, Ayling, Chalder et al

    Study finds stress linked to increased risk of getting COVID-19 https://www.unitedkingdomnews.net/news/272178432/study-finds-stress-linked-to-increased-risk-of-getting-covid-19 eta: see also https://www.nottingham.ac.uk/news/stress-associated-with-an-increased-risk-of-getting-covid-19-study-finds
  16. Sly Saint

    Psychological Predictors of Self-reported COVID-19 Outcomes: Results From a Prospective Cohort Study, 2022, Ayling, Chalder et al

    Abstract Background Previous research has shown that psychological factors, such as stress and social support, are associated with greater susceptibility to viral respiratory illnesses and more severe symptoms. During the COVID-19 pandemic there has been a well-documented deterioration in...
  17. Sly Saint

    Doctors with ME: Putting it into Practice: What NICE ME/CFS means for GPs

    pdf https://doctorswith.me/wp-content/uploads/NICE-GP-QA.pdf only 4 pages, much, much better than the MEAs 28 page 'summary'.
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