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  1. Sly Saint

    CBT for IBS induces bidirectional alterations in the brain-gut-microbiome axis associated with gastrointestinal symptom improvement, 2021,Jacobs et al

    Cognitive behavioral therapy for irritable bowel syndrome induces bidirectional alterations in the brain-gut-microbiome axis associated with gastrointestinal symptom improvement Abstract Background There is growing recognition that bidirectional signaling between the digestive tract and the...
  2. Sly Saint

    Functional neurological disorder after vaccination: a balanced approach informed by history, 2021, Wessely et al

    Reports, incorporating video footage, of neurological symptoms such as paralysis and seizures as a complication of SARS-CoV-2 vaccination are circulating on social media and have caught the attention of the professional community.1 It is an urgent task to determine whether these are coincidental...
  3. Sly Saint

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    CIDG end of year message 2021 CIDG Co-ordinating Editor's message https://cidg.cochrane.org/news/cidg-end-year-message-2021 https://www.futurecochrane.space/
  4. Sly Saint

    Understanding the lived experience of Long Covid: A rapid literature review, 2021, Baz et al

    Abstract Long-Covid (LC), as a patient-defined illness, has rapidly emerged as both a medical and social issue since 2020, drawing headlines in the public and global domain. In the UK, people experiencing ongoing symptoms of Covid after the initial infection came together online to try to make...
  5. Sly Saint

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    20 December 2021 Free online ME/chronic fatigue syndrome training for health professionals https://www.csp.org.uk/news/2021-12-20-free-online-mechronic-fatigue-syndrome-training-health-professionals
  6. Sly Saint

    News from Aotearoa/New Zealand and the Pacific Islands

    Long-COVID is the elephant in the room, say physiotherapists https://pnz.org.nz/Story?Action=View&Story_id=4908
  7. Sly Saint

    United Kingdom: NHS Lancashire and South Cumbria ME/CFS

    Hard to tell if it has been updated or not as it's quite difficult to navigate you have this CLMW Persistent Pain Service Myalgic Encephalomyelitis/Chronic Fatigue Syndrome https://www.lscft.nhs.uk/clmw-persistant-pain-service Then there is the Central Lancashire Moving Well Service...
  8. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Alex Sobel Shadow Minister (Environment, Food and Rural Affairs) To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that NHS staff providing medical and personal care to ME and long covid patients are aware of the harmful impact of...
  9. Sly Saint

    USA: Foundation for Total Recovery

    http://www.brainonfire.org/autoimmune-encephalopathy-secondary-to-infectious-disease-february-9-11-2022/
  10. Sly Saint

    Harvard Health CFS website content

    that page appears to have gone. but this one https://www.health.harvard.edu/a_to_z/chronic-fatigue-syndrome is asking you to log in to be able to read it. you are charged for this.
  11. Sly Saint

    Chronic fatigue tests being sold online

    the test is still available. Also the site could do with an update " Things that may help reduce symptoms of CFS: A gentle graded exercise program that gradually increases Cognitive behaviour therapy (CBT) Chronic fatigue is often associated with chronic stress and 'adrenal burnout" so...
  12. Sly Saint

    ME Aware Surgical Teams UK?

    there is some useful info on mepedia but some bits are controversial. http://me-pedia.org/wiki/Best_practices_for_hospitals
  13. Sly Saint

    NHS video Pilates for CFS (not a recommendation)

    could have been worse Video: belly dancing for beginners (45 minutes) https://www.nhs.uk/conditions/nhs-fitness-studio/belly-dancing-for-beginners/ who'd have thought you could learn belly dancing on the NHS
  14. Sly Saint

    Covid-19 vaccination experiences

    that's my concern at the moment. the nearest place to book online is way too far for me to get to but I heard from a neighbour that they were doing boosters where I had my initial 2 vaccinations done. This would mean either travelling on a bus for half an hour with probably a lot of people not...
  15. Sly Saint

    What are the best coronavirus masks?

    What masks are most effective against Omicron?
  16. Sly Saint

    Channel 4 programme about deaths on disability benefits

    he might be interested in watching the latest 'Dialogues......'video to see the origins of the bps approach and the capability to work assessment. https://www.dialogues-mecfs.co.uk/films/the-tangled-story-of-me-cfs/
  17. Sly Saint

    Channel 4 programme about deaths on disability benefits

    thread on the survey they did for the program https://www.s4me.info/threads/uk-survey-for-c4-dispatches-on-disability-benefits-system-deadline-end-of-august-2021.22166/
  18. Sly Saint

    Channel 4 programme about deaths on disability benefits

    The issue of the capability to work assessment is beginning to get renewed coverage with a lot more new claimants as a result of the pandemic who are only starting to understand how awful the system is now they are experiencing it for themselves. But as with long covid, I suspect that it will...
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