Search results

see https://www.s4me.info/threads/problematic-training-courses-please-add.1796/ the research series based on the PACE trial has been removed. However, reading through more of their blurb, under the What is the current definition of ME/CFS (definition taken from patient.info) it says also of...

The service appears to have been replaced with a Long Covid clinic and much of the info is about post-viral fatigue or post-covid fatigue as they also refer to it. The biggest irony is this " Post Exertional Malaise A worsening of your fatigue after exertion It is common to experience...

the link now goes to an article from 2019 https://www.nrshealthcare.co.uk/articles/news/the-science-behind-why-m-e-does-not-make-you-lazy The science behind why M.E. does NOT make you “lazy” very different to the previous offering. No LP, CBT or GET.

Merged thread East Coast Community Healthcare ME/CFS service website " We are a specialist NHS service that seeks to meet the needs of people who have a diagnosis of Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) in Norfolk and Suffolk." mixed bag of information quite...

this has now been removed.

Funding now clearly a priority "We are now looking to recruit our first Director of Development, whose role will be to work with the global community to grow our fundraising income substantially in the coming years. As a member of the executive leadership team, they will lead the Development...

Abstract Background Trial monitoring is an important component of good clinical practice to ensure the safety and rights of study participants, confidentiality of personal information, and quality of data. However, the effectiveness of various existing monitoring approaches is unclear...

I have watched it twice now and my only minor observation is that many of the documents shown as stills could be on screen for longer, leaving the audio to run, as sometimes they flash up and off and are almost impossible to read (unless you pause the recording). Most of us are familiar with the...

https://the-tech-trend.com/reviews/how-to-tell-if-sitting-in-front-of-a-computer-all-day-is-making-you-fatigued/

Alex Sobel Shadow Minister (Environment, Food and Rural Affairs) To ask the Secretary of State for Health and Social Care, whether his Department has plans tackle the misdiagnosis of ME patients; and with whom NICE plans to work to raise awareness of that misdiagnosis among the public...

Today.

What they don't seem to acknowledge is that no-one is saying that it is impossible to recover. The recovery rate (for adults) is estimated at around 5% regardless of what 'treatment' is undertaken. But the reason some recover and the majority of pwME don't is unknown.

no mention of PEM https://www.physio.co.uk/what-we-treat/chronic-pain-fatigue/chronic-fatigue-syndrome-me.php @PhysiosforME

Merged thread very good, comprehensive info on ME/CFS including videos and photos. imo worth sharing. https://www.physio-pedia.com/Myalgic_Encephalomyelitis/Chronic_Fatigue_Syndrome

link to the chronic fatigue syndrome service doesn't work. The policy for treatment download is from 2018. https://www.birminghamandsolihullccg.nhs.uk/your-health/treatment-policies/chronic-fatigue-syndrome (separate search brings up the Chronic Fatigue syndrome service website...

it's only been around for 30years....:rolleyes: and pwLC are now using it, so it's time they read up on it. Even though NHS Scotland haven't updated their website since the NICE guidelines PEM is there...

NHS Oxford University Hospitals ME/CFS service website What therapy involves Strategies covered in physiotherapy sessions may include: https://www.ouh.nhs.uk/chronic-fatigue/treatment/whats-involved.aspx

https://www.express.co.uk/life-style/health/1535717/chronic-fatigue-syndrome-symptoms-feeling-tired-all-the-time If only the NHS website had some decent info on it:banghead:

Please could this video be put onto a separate thread so it gets highlighted on the net. People at the NHS need to see it. An abbreviated version (eg from the first 6 minutes or so) would also be ideal to replace the old MEA video on the NHS England website. @Russell Fleming