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update from Twitter theyve already had over 500 people complete the survey

maybe he was having a bad day and was a bit brain foggy - he has still got ME even if he can function pretty well most of the time

BBC still feeling the influence of SMC BS - even the tabloids like Daily Mail and others do a better job than BEEB

bloody Chalder and her fear-avoidance and symptom focussing again - as we used to say in the olden days she's like a record with the needle stuck

update on Twitter

interesting first time I came across the term malaise was on school exchange to France. The family I was staying with had given me melon with port as a starter when we were away camping on a very warm day. I followed the meal by being sick and had to retire to my tent for 24 hours. What I had...

so what does Gabrielle Murphy bring to the biomedical table it would seem she has a clone as well according to the attendees list - I hope that means she doesnt get 2 votes

I hope they take notice of your excellent work @JaimeS and act on the points raised

mm I didnt fill it in all the way the second time but it didnt block me at all maybe drop them an email to see if they can reset it

i get them sometimes too evenings are when I notice them and I think it is more often when I have overexerted. I also have history of cardiac issues in my family I get discomfort and occasional pain left upper arm too which I thought could be angina. I plucked up the courage to ask GP about it...

sounds like you had a glitch on the buttons maybe give it another try @Trish worked ok for me and I just tried going in and filling in past the demographics and it worked ok

Very pertinent in the U.K. which has I understand a worse record on picking up cancer than other European countries and this is something we should be highlighting at every opportunity as a consequence of the MUS mentality.

I see the thread has been posted on S4ME Facebook and my Avatar is rather prominent on the post. I hope if NICE are monitoring Facebook they’re not scared by my evil minion. I picked it for the colour and wild hair not the teeth :laugh:

https://www.alzheimersresearchuk.org/new-findings-link-activity-gut-liver-alzheimers-risk/ @mariovitali may be of interest

would it be inappropriate to say what a load of bollocks :oops::whistle:

:wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead:

yep Ive been known to scratch myself in my sleep too

ME Association also have a leaflet about going into hospital and another on anaesthetics - leaflets are written by Charles Shepherd and Darrel Ho-Yen http://www.meassociation.org.uk/shop/medical-management-leaflets/going-into-hospital/...

Moderator note: This thread is for submissions made and submitted by various stakeholders on the draft scope for the NICE ME/CFS Guidelines Review. Discussions on the draft scope can be found in these threads: Discussion of first section of draft scope (members only) Discussion of second...

interesting how perceptions change - when I initially read about paleo etc in Dr Myhills website 2 1/2 years ago I thought you must be joking and couldnt envisage it since then last year i cut out white and beige carbs last year and that has become my new normal from where I am now paleo/keto...