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    Mental Health

    Interesting from Twitter. It seems a mental health conference did not go down well Some aspects may sound familiar. I have not dug very deeply, but it seems UK mental health initiatives are not universally appreciated deeplys://www.magonlinelibrary.com/doi/10.12968/bjmh.2018.7.5.198
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    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    Thank you.
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    Low dose hydrocortisone as a treatment for ME/CFS

    Hydrocortisone was a huge set back for my daughter. Endocrinologist suggested this due to low base cortisol level ( yet good acth response) . Still to recover fully. ( And she was making progress) De Vega has a number of papers re glucocorticoids and ME. Good pre reading if you are considering...
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    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    would love to know what this meant?
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    Glasgow: Holistic Chronic Fatigue Syndrome/ME service

    This was formerly the homeopathic hospital which has been subsumed into NHS
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    David Tuller: Trial By Error: How to Avoid Ethical Review

    Is this worthwhile highlighting to the new organisation at Bristol re research standards?
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    Information about NICE committee members

    There was a twitter thread this morning re NICE panel member I'm rubbish on twitter and couldn' t find full thread but this may be worth checking out ( for those that understand how it works!). More of a need for Dr Speight
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    Petition: Review treatment of people with ME in Scotland

    Well done @Emsho and team. You seem to have hit the spot ! Thanks. Just need the whole GIRFEC/ data sharing / named person issue for kids hit on head now too...
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    If only Nigel Speight could have the same luck- EC' s studies would have some context provided from someone who acknowledges severe ME in children.. Great news though.
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    NZ - Complex Chronic Illness Support - Towards Wellness course

    Again the takeaway issue is the conflation of chronic fatigue ( in all its manifestations) with ME. If a clear diagnosis cannot be made, then this is what happens when everyone is lumped together.
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    UK - Discussion of how many patients use NHS ME/CFS clinics

    Is this solely related to England ( and Wales) or is it meant to be UK based?
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    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    Thank you.
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Hmm. There is usually significant missing data but little effort to explore the reasons for this. I suspect researchers understand why this may be, yet little is done to follow it up. Perhaps worth highlighting too.
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    David Tuller: Trial By Error: Yet Another Letter About the Lightning Process Study

    Much appreciated @dave30th . This is the kind of paper which will no doubt be in the evidence for NICE ( together with FITNET and MAGENTA).
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    UK - Discussion of how many patients use NHS ME/CFS clinics

    As far as I know, Scotland has 3 locations for clinic type " support" 1 clinic in Western Isles (perhaps related to organophosphates?) Integrated Care Centre, Glasgow (formerly homeopathic hospital - offers meditation etc) Edinburgh - this is the clinic I think that @Emsho attended for GET...
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    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Great news thank you
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    Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals

    @Brian Hughes . A critique of FITNET and MAGENTA in due course would be appreciated, as these will inform NICE deliberations and seem to be full of similar issues.
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    Action for ME: The PACE trial and behavioural treatments for M.E. [position statement]

    @Emsho note scottish guidance.perhaps something for MEAction. There is an even worse one for kids from psychologists for NHS Scotland.
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    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Tagging @mariovitali
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    Cochrane ME/CFS GET review temporarily withdrawn

    The question is by whom ?
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