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At the end of the film it states that because of the vCJD risk "Nobody who lived in the UK between 1980 and 1996 is allowed to donate blood in any other country." I did not know this.

Last night's BBC documentary is a great expose and inditement of capitalist greed, Thatcher-era deregulation, and government policy. I'd urge you all to watch. The programme can be viewed here: https://www.bbc.co.uk/programmes/m0006p49 "The story of Britain’s biggest ever food scandal. Mad cow...

We are being bombarded with low-quality commentary pieces that get us no closer to our goals. I believe this is in part driven by the huge interest in journal papers on this subject. They often become the most highly downloaded and shared papers in the respective journals.

I mean wow.... can't even get the acronym right: 'CFSMS' (!), 'CFS/ME' and 'ME/CFS' in the abstract alone. That's one way to put readers off.

I don't really know what to think about this. I guess time will tell. Their objectives seem reasonable, though RE advocating for ICC I personally am not a big fan of the US ME4ICC brigade and how they approach the issue and go after other charities. Having said that, I do think some of the UK...

Diagnosed with IBS at 20 - many years before ME onset. Luckily, has generally been quite manageable and with ME onset it has been no worse.

Had tinnitus in left ear since I first got ill in Spring 2012. It was how I knew something was wrong because I wouldn't have symptoms consistent with ME for another few years. Rather I had tiredness, some generalized pain, and the tinnitus. It became worse as I got more ill several years later...

I did it myself at one point. I think by bringing up Myhill - who I don't have much time for - you have proved my point. She is the perfect example of a 'fringe' doctor; indeed, it is partly this that has got her in trouble with the NHS. Like Dr. Enlander, I'd like to see some proper evidence...

All this nutritional supplement treatment stuff was the main reason I moved from the other forum to here. As I said earlier, being a Brit, I had no idea people were spending hundreds of dollars a month on these 'protocols'.

As a Brit, the whole way the American system works, with all these doctors and their protocols etc. Just so bizzare! I mean it's good in a sense, because you get doctors trying different things - thinking outside the box, whereas in the UK everything is so standardized and by the book. On the...

Why not do a clinical trial. We can't keep having all these 'fringe' doctors trying to sell stuff from their bedrooms.

Looks like a bottle of lube. Another doctor who's found the answer! This time it's the methylation cycle. BRAVO.

i noticed at least some of the women have been told their subsequent symptoms are due to fibromyalgia and 'chronic fatigue'. Not good enough.

exactly. i am familair with the shortcomings of the test. I have done a month gluten-free before - it was hard to tell if things were better or not. I felt like my stomach was little better but perhaps not other symptoms. But with the cycle that I go through it is really hard to distinguish what...

I've had a coeliac screen which came back negative, but am so tempted to try gluten free again for a month.

I imagine the gut microbiome correlates with any significant change in bodily systems. The key question of course is: is there a causal connection?

Stanford now checking for horns in ME patients. ;)

this is a good article and should be shared / referenced as needed.

I have often felt the lymphatic system plays a key role in this illness. I have problems with lymph nodes in my neck and upper chest on my left side only. It is my understanding that there are still a lot of unknowns about this system. It was only recently that it was confirmed that the brain...

Another paper to add to Esther Crawley's expansive list of can-i-really-get-a-paper-out-of-doing-this-lol research output.