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watched this last week. very well-done short film.

I wonder if you could get the charities to share this on their social media pages?

I think what this boils down to is that we have an 'identifier' but we don't yet understand why. Of course the impedance results are relevant - we just don't know how relevant.

CP is quoted in some of the media coverage. I agree. It's quite crazy that Ron Davis himself often uses the term CFS rather than ME or ME/CFS, given the state Whitney is in.

In a sense, the study does not lend itself to having results in the abstract. You could quote impedance results, for example, but they may have no direct clinical relevance. The main result is a sparation of ME patients from healthy controls.

https://home.bt.com/news/science-news/blood-test-for-chronic-fatigue-syndrome-may-be-on-its-way-11364358497775 Subtitle: "The test proves that the condition is linked to stress and not imaginary, say scientists." :banghead:

Eugh. I can see this spiraling out of control.... we just can't do nuance in 2019 can we? The Stanford press release is short on those key 'qualifiers' that frame the results in the wider context.

this is why we have to be careful. they're ready to pounce on any wrong move. we can't have a repeat of the XMRV scandal.

https://www.pnas.org/content/early/2019/04/24/1901274116 Here is the paper. Subscription required.

As far as I can tell, and unless something else is going on, the paper is embargoed until 3 pm ET. I imagine the news article should have respected that embargo and that is the reason why it has disappeared.

Excited to see this. PNAS is a high-impact journal and is of course multidisciplinary, which is an advantage. I worry with all the pressure on Ron and his team that they may try and rush things through. On the other hand, they are top-class scientists and know what they are doing.

there's no dosage info because this is an in vitro study. I'm not a biologist, but would assume it's hard to calculate dosages from these sorts of studies.

what funding is this? when will we find out where this recently-publicised Aus Government money will go?

hmm. with all due respect, looks like a poundshop ME Action. ;-) I could see this being the personal project of one person.

the guy who put this together has been quite active on social media recently. he's sort of jumped in, all guns blazing - can post about mold, brain injury, ME, enteroviruses within a few minutes of each other. without being disrespective, he's getting a bit carried away. we could do without...

I'm not sure if it is really. I have actually been on NAC recently. Too short a period to see if it has changed anything. These episodes are sporadic anyway.

No, this sounds pretty similar. I also have tinnitus. Now seven years of no silence :-( . I have no doubt the tinnitus and the vision issues I have, and perhaps these episodes before sleep, are all connected.

glad you've had a good few weeks. I'd agree that you need to give this much longer, given the cycle of worse and better weeks/days that so many of us have. let us know how you get on!

yeah, this sounds like we could be experiencing the same thing although I stress that this was not dreaming as I was fully awake. Too awake, almost. it's like you can't control your train of thought and the associated mind imagery that goes along with it.

I don't know how else to describe this. Maybe it's just what others call 'tired but wired'? This started about a year ago. I would go to bed and once the light was out it became apparent just how frantic everything in my brain was. It's like my brain is bouncing around in my head. There is no...