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  1. ladycatlover

    United Kingdom: Getting a Wheelchair on the NHS

    I told the bitch assessor that to the end of my front garden was around 5 metres. She neglected to mention that. They lie by omission.
  2. ladycatlover

    How ME/CFS Progresses: A Framework for Research and the Prevention, Treatment, and Rehabilitation in ME/CFS Nacul et al 2019

    I thought I had IBS, symptoms were similar anyway. But then (long story) found in fact I had diverticulosis. Was diagnosed with diverticulitis on a trip to visit daughter in London, and the nature of the pain I had then was exactly what I'd felt before when I thought IBS was playing up. So...
  3. ladycatlover

    Bone, not adrenaline, drives fight or flight response

    I waited over a year for my PIP Tribunal, this was incredibly stressful for me. During that year I had suicidal ideas, not something that I had prior to the longstanding stress over Tribunal. Once Tribunal over, with a very positive result for me, I was totally exhausted. That exhaustion lasted...
  4. ladycatlover

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Ah yes, Halloween, such a great date to publish things, or leave things. What a shame it doesn't coincide with a full moon as well! ;)
  5. ladycatlover

    Flower Arranging Helps Reduce Fibromyalgia Pain

    We prefer to go for the single stem approach. Currently it's a single stem of Acidanthera. That way OH can actually manage to cope with it. ;) And I don't have to bother.
  6. ladycatlover

    Fragrance sensitivity

    This is prob out of date by now, but this is something I was looking at way back then... https://oem.bmj.com/content/oemed/56/2/73.full.pdf
  7. ladycatlover

    Fragrance sensitivity

    The Grauniad is a bit slow to recognise MCS. :mad: I had a work placement with HSE back in around 1999 (?) (can't remember dates these days, but it was definitely before 2000). Part of the Applied Psychology degree I didn't finish. I looked at MCS and CFS/ME way back then as part of my...
  8. ladycatlover

    Fragrance sensitivity

    Fragrance sensitivity: why perfumed products can cause profound health problems. The Guardian, 15 September 2019 An intolerance to manufactured scents can lead to migraines, respiratory issues and long-term sick leave. So should they be banned in public spaces...
  9. ladycatlover

    What is "Chronic Fatigue" in the Wessely School (CFS vs CF Wessely 1997, Prins 2006, White 2011)

    On MEChat (email List) we've always called him The Weasel. We have a virtual boat called the Simple Simon, and we still occasionally take her out on someone's birthday. Usual entertainment is getting The Weasel to undertake demeaning tasks, or possibly being thrown to the virtual sharks...
  10. ladycatlover

    UK - New chief medical officer/government adviser appointed, 2019

    I have to say I'm not enthused by this... Even a few minutes' exercise is good for you, new guidelines state I did have a quick search in the actual document under the term "disabled" and found that word mentioned 23 times. All of them seemed very enthusiastic about exercise, with no...
  11. ladycatlover

    UK House of Lords/ House of Commons - relevant people and questions

    So who's the "expert clinician"? From what I've seen of the learning modules in the past they aren't fit for purpose. Though I admit I haven't looked for more recent ones - suspect if there are more recent ones they prob won't be any better. Please let me know if they are!
  12. ladycatlover

    Monaghan & Shepherd meeting DWP and assessment companies

    Gosh, just did a bit more poking around and found this. It's a long set of requests and comments, but I thought it was interesting. And I commend Craig Gilding for his hard work to actually get a response that answered his questions! And some of the comments interspersed are of interest too...
  13. ladycatlover

    Monaghan & Shepherd meeting DWP and assessment companies

    They were talking about video taping PIP assessments, which I would not be happy with. This is from November 2018. I don't know what's happening about it now. Must check! Checked. July 2019 report.
  14. ladycatlover

    Monaghan & Shepherd meeting DWP and assessment companies

    I got an Occupational Therapist. Who blatantly lied.
  15. ladycatlover

    New Yorker: A Town for People with Chronic Fatigue Syndrome

    Here's a pic of us together. I live in hope that Mary gets enough help from Ampligen to come back to UK again so we can meet again. Mary and me by Maggie, on Flickr
  16. ladycatlover

    New Yorker: A Town for People with Chronic Fatigue Syndrome

    So glad to see my friend Mary Schweitzer mentioned. She came over to UK for one of the early Invest in ME Research conferences. I was outside the Dept of Health at that time, as part of demo. So happy to meet up with Mary afterwards - she came back to our daughter's home with us, and we all...
  17. ladycatlover

    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    Ohhh, was considering travelling from Liverpool for this... But OH checked his diary and has booked journey and is going to London on a bus to demonstrate (I'm sure you can make a wild guess as to what this demo is about!) on this particular Saturday. :cry: I do hope that @dave30th might be...
  18. ladycatlover

    Modern-Day Relics of Psychiatry, 2019, Tripathi et al

    Maybe not quite on topic, but I suggest The Yellow Wallpaper is a good read. Read for free here.
  19. ladycatlover

    University of Liverpool survey: 'Emotional Distress in Chronic Fatigue Syndrome', 2019

    Well given that the working age may to rise to 75 ... Shouldn't they be looking at at least up to that age then? It's already over 65 isn't it? Dunno. Sorry this is semi-political, but if Liv Uni say it's to use common working age they should be looking ahead a bit surely?
  20. ladycatlover

    Trial By Error: Lead Author of Cochrane’s New Bias Guideline is LP Study Co-Author

    @dave30th Thank you very much for your post - dated my 71st birthday. What a great birthday present! :) :party: :emoji_beers:
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