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I've only read the abstract, but there's a limit of what can be concluded on the basis of a "retrospective exploratory qualitative study a group of 26 affected adults". I suspect that if White had written the article, he'd have made quite different 'findings' from the same evidence, so it's best...

Thanks Trish. I think that this is right, but that also, it could encourage Brady to dismiss your concerns. One of the many annoying things about all this is that things are so bad, the truth can seem implausible to those in positions of authority!

When it was announced that it was coming to PBS in a year that seemed so long to wait... recent years seem to have have passed so quickly for me.

I get the impression that they're going more for evidence of data fabrication/sloppiness, where there's less room for dispute. Academia's disinterest in details could explain why so many seem to let PACE get away with such BS arguments, and why White et al. think it is in their interest to make...

This like the sort of important thing it would be good to try to influence now, but that it's easy to forget about until things go wrong, and then we have to try to fight to get them to make changes. I wonder if we could draw attention to the inappropriateness of using certain outcomes in...

This is what Tuller said:

He's done some work with Nick Brown, and that lot. He's already aware of PACE, but seems to view it as something others are dealing with. Here he's the guest on his own podcast. It's not really concise, and may not be ideal for people looking for a nice, clear listen when exhausted. I'm...

I wonder if she had to answer all that stuff if all she was doing was getting an amendment to her earlier approval? It could be she evaded a lot of the oversight that would have occurred with an application for a new trial?

Tuller mentioned getting some via FOI in his blog, so they may not have been posted on the Bristol SMILE page.

I think that's the key point. Although it is a bit complicated by the fact that it seems the feasibility study became the full study.

Oops - sorry. I saw it was marked as being a limited offer, so when the full price came up I assumed the offer had ended.

Maybe - doesn't sound good from what Trish says. Some patients just get a bit suckered in to nonsense because they want hope/some authority figure to trust, but they're not really 'committed' to it. Someone like Colin Barton should be given up on, but it can be worth trying to have productive...

I think that the 'free' part of this ran out. Seems a little odd to be marketing a $90 test like this. If paying that much I'd want to have some reason to think that the test results are likely to be helpful.

It's possible I got to their site because it looks like they gave some funding to a dodgy project from Clare McDermot: https://sapc.ac.uk/conference/2017/abstract/collaborative-patient-and-public-involvement-project-develop-new Looks like this group needs some help. Discussion of the project...

The Norwegian biopsychosocial lot seem keener to tie themselves to LP than their UK colleagues. I doubt that's going to work out well for them in the long-run. Is there a way to post a link to Tuller's new piece?

I think it's really easy for patients to underestimate how much incompetence and laziness there is in medical research. It's so important to us to get to the truth... but for some researchers, this is just a job.

Get Wessely in! edit: my stomach turned on seeing my own post. I think we'd need something more structured for a slippery one.

That was worth asking him about! Great work cheesus.

Thanks - I expect it was my fault for not being clear. That is interesting. When PTLDS people can often be diagnosed with ME/CFS, maybe that shows what a rag-bag ME/CFS is?

Thanks - sorry I may not have been clear. I meant what sort of results something like MS, etc would with the categories assessed in the above figure (systemic inflammatory response syndrome, diseases caused by parasites, gram negative bacteria, etc). I'm entirely new to this sort of testing, so...