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Just saw this: No idea what Dr Oz is like, but he's got millions of followers on twitter, so it's certain to get quite some reach.

@Nathalie Wright - you might be interested in Pia Cox's presentation above, and the use of claims about the benefits of rehabilitation to justify a time-limit for cutting off insurance benefits.

Thanks @inox, and welcome to the forum. I'm sure I've seen loads of these quotes, but I've never thought to compile them, so don't know how to find them. The Sense About Statistics pieces both praised patients for being critical of research (I'm not sure how many researchers this would attract...

Anyone mates with him? It's rather a shame that so many are us are rather lacking connections with powerful people (or anyone much). I saw Tuller got a couple of people criticising him in the comment section. It shows how careful he has been that all they have to complain about is that he says...

Thanks Jo, and Sasha. Good to do what we can to make the most of these sorts of thing.

Thanks to Kind and Lipkin.

I agree that it's often better to start by criticising people in a gentle way, and to try to be as helpful as possible. I might try to do that regardless of status. It can also be hard to know what 'status' someone has. What if a mere PhD student ends up becoming a media sensation based on spun...

I was thinking of the criticism of how people like Andrew Gelman have been critical of Amy Cuddy, eg: https://www.nytimes.com/2017/10/18/magazine/when-the-revolution-came-for-amy-cuddy.html There, it almost seems like it was thought mean for high-thinking methodologists to criticise a mere...

PS: Looks like the ActiveME app mentioned in that article has been abandoned: https://itunes.apple.com/gb/app/activeme/id458308805?mt=8

It's probably best to be cautious with speculations on this. We can't really know, and we've seen how other people's speculations about the motivation of PACE critics are often nothing more than a reflection of their own bigotry. It's hard to prevent oneself from speculating on the...

It is so widespread amongst people with power and influence, and we need to win more of those people over if we want to make speedy progress. Also, I don't think that it's as simple as them just being calculatingly self-interested. I think that many of them have a genuine sense that they're in...

I see some people raising CFS/PACE concerns in the replies on twitter. Always good to get more critical attention on the SMC and Fiona Fox.

It really does seem to be the case that many of those in 'soft' science see debate, questioning and calls for transparency as 'harassment' and 'abuse'. It baffles me, but I think that it is a culture we're going to need to try to understand.

Their attempt to explain this was attached to the Vada article: Response from the University of Bristol A spokesperson from the University of Bristol said, ‘The recent FOI request to the University of Bristol asked for information relating to “official records” of harassment of our staff. The...

Looks like both Peter White and Debbie Smith disappeared from their timetable. Someone said Smith was also at Barts, and she was due to speak on: "Postural Orthostatic Tachycardia Syndrome (POTS): A claims epidemic waiting to happen? Debbie Smith, Chief Medical Officer, Swiss Re"...

So Tom Cruise won't be able to donate $2 million to scientology at 00:01.

Thanks for the french perspective @Nicolas the french guy , and welcome to the forum.

I vaguely remember that patients were really hopeful about this clinic, and that it was set up by someone patients trusted, but that then this person got side-lined. I was always suspicious - the 'complex chronic disease' title smelt like a trap.

Public Relations - don't worry! It wouldn't surprise me if the article was largely based on a press-release.

But it wouldn't be okay to post about it here? Rule 11 is thought to apply to descriptions of how other ME/CFS patient forums helped develop someone's understanding by providing useful information, debate, etc?