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    Guidance for commissioners of services for people with medically unexplained symptoms - 2017

    Chaired by Jeremy Clarke, presumably the one who is at the LSE Centre for Philosophy of Natural and Social Science and who says: "My research at LSE is part of a progressive inter-disciplinary project led by Nancy Cartwright looking at how evidence can be used to make better predictions for...
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    Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

    This shows the dangers for people in using social media, especially in such sad circumstances. How does one convey, within the word limitations imposed by tweets, precisely how one is using the word "could" in the phrase "the children could get well." I don't suppose that modal verbs are any...
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    Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

    If Sharpe liked it, he may believe it to be some obscure, unrecognised, literary allusion. It is strange that the medical provision is exempt from blame.
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    I wonder whether there might not be a little bias in that assessment, and what attempt has been made to refute the conjecture.
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    COFFI - The international collaborative on fatigue following infection

    How ironic. This should have been the direction of travel since 1989 when there was a paper saying aetiology is not important, and allowing for the broadening of criteria until research was meaningless. Done by anybody else..... Given discussion on a recent thread, suggestions as to what they...
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    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Given the terms of that 1989 paper by David, Wessely, Butler and Chalder which we have discussed elsewhere and which showed that there was an awareness of the possibility of harm arising from exercise, it might have been worth looking into the matter. In the other place I did start a thread...
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    Disability News Service: "Civil servant sparks fresh concerns over ideological basis of jobs strategy" [BPS discussed]

    I have for some time been of the view that this lies behind all the public funding for the Paralympics. Propaganda to mould the public perspective against the ill. See what you can do if you only make the effort.
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    "Time for Unrest": ME article by Nathalie Wright

    My recollection of the late 1980's is that it was thought that there was a roughly equal split of males to females in the sudden onset category, and higher ratio of females to males in the slow onset. I don't know whether this was valid research or whether it has been corroborated.
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    Vincent Deary, "CFS and the facts of life - an article for clinicians"

    Many of the problems of CFS could be avoided by the provision of secure asylums. Not for the patients.
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    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    You know me. My mind wanders. All this talk of Oxford criteria made me inquisitive about the two others, along with Peter White, thanked for financial support for the conference establishing the criteria. They were: 1. Duphar Pharmaceuticals. They appear to have changed their name to Solvay...
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    United Kingdom: Sussex & Kent ME/CFS Society News

    Thank you for that. It is as I thought. They would just like people to believe that they are affiliated to MEA.
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    United Kingdom: Sussex & Kent ME/CFS Society News

    One would imagine from that website address measussex.org.uk that the organisation was affiliated to the MEA. Is there any such affiliation? It is noteworthy that the email address refers to sussexmes.
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    (Not a recommendation) Alastair Miller: The prognosis of CFS/ME

    The question I would like answered by those who hold such beliefs is: In what use of the word "same" do the third who recover have the "same" illness as the third who do not?
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    2008: Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness, Barker

    It is hard to avoid the conclusion that, potentially, the most important tool for those advocating a biopsychosocial approach to anything would be a mirror.
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    Guardian: "Don’t listen to Gwyneth Paltrow: keep your coffee well away from your rectum"

    No wonder we're socially isolated. People may have the wrong impression. After reading this, who would accept an invitation to come round for a coffee?
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    "Time for Unrest": ME article by Nathalie Wright

    Here it is https://www.researchgate.net/publication/20602098_Management_of_chronic_post-viral_fatigue_syndrome
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    "Time for Unrest": ME article by Nathalie Wright

    When reading the above comments it is always worth recalling the 1989 article by Wessely, David, Butler and Chalder in which it was acknowledged that there was a possibility that some patients might be harmed by exercise, but that they could not be distinguished from those who were thought...
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    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    One has to accept the possibility that Crawley has been harassed. There is no way of knowing. It is pointless trying to discuss the matter in such terms. The question that matters is, has she made the case that she has been harassed in such a way as would persuade a reasonable audience? Let us...
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    "Time for Unrest": ME article by Nathalie Wright

    It might be time to look up the direct quotes from that almost contemporaneous lecture at which various comments, generally regarded as disobliging, were made. For the sake of history, one would be glad to have clarification of the intended meanings.
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    Is the NIH/CDC going to use the right PEM definition for all their future research? Do patients need to act? Deadline 31 Jan

    Even the word "exertion" troubles me. We seem to have "activity", "exertion" and "over-exertion" being used interchangeably. The word "exertion" may suggest merely activity or exercise, but would generally imply some level of activity above a normal base rate. The problem with PEM is often...
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