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Yes, the meetings (like NICE ones) were confidential, so I have to be careful what I say. However, it helped my development to be part of these (sometimes private) discussions between committee members.

During my time as a patient representative with the NIHR, more than once I have been in a room full of consultants, mostly surgeons. Hearing their views on psychiatry was, to say the least, interesting. Lets just say, it wasn't exactly positive.

I don't read the biological research around the causes of autism extensively, but much of what I have read suffers from similar problems as the biological research in ME: small sample sizes, poor use of appropriate controls, correlation being seen as causation, data 'fishing', etc. Autism is so...

I've posted forum links and academic references here, hopefully to bring them to the attention of the members on the NiCE guidelines committee, as per the purpose of this sub-forum: https://www.s4me.info/threads/purpose-of-this-subforum.7173/

I made the mistake of doing a Google search to try to find out if Wessely is esteemed by his psychiatrist peers (those not involved with his CFS/ME work) or whether they are appropriately embarrassed 'by association' (sharing the same profession). This led me to the following link...

This is the paper he is referring to in his 2012 comments: http://www.simonwessely.com/Downloads/Publications/CFS/6.pdf I've just read it after following @Sly Saint's comments on this thread...

I'm not sure if the paper by Twisk, as discussed in the 2017 thread, has been considered by those here on the NICE committee. I adding the link to this thread in case it has been missed, as the paper (and the surveys it references) are of particular relevance to this call for evidence...

Your carers sound appallingly unprofessional, but I understand how it may not be possible (as a very sick person) to be able to pursue a formal complaint or even to be able to challenge these sort of personal judgments. This is why we desperately need appropriate and explicit NICE guidelines...

Hardly a new paper, but I can't see this paper as a title on any existing thread. It's interesting to read Wessely himself state that they found no evidence for CFS/ME patients having negative attitudes to psychiatry, nor for having a particular 'perfectionist personality': Sci-hub link...

Thank you for posting that - it is very useful information for members who can access the 200 listed referral agencies. It's a terrible situation in the UK that getting professional legal representation is a complete postcode lottery (since the removel of Legal Aid for benefit appeals and...

But mothers can have both autistic and non-autistic children (including having the non autistic child/children after the autistic one/ones). I am a case in point in that I have one (adult) child who had absolutely no autistic characterisitics as a child and one (adult) child who would have...

So, I'm presuming this service based trial was done here: http://www.srft.nhs.uk/about-us/depts/clinical-health-psychology/patients/about-our-service-cfs-me/ If you take a look at the 'books and website' tabs, you will see who's work they base their approach on. Edit: On reading the article...

The other problem is that GPs will get their information on (and understanding of) 'CFS/ME' from the patients they see most often in their consultations, and most of them are unlikely to ever see, much less manage long-term, a severe (or even moderate) ME patient. The highest proportion of...

I am not saying this with humourous intent: I still feel traumatised by my two previous experiences of NHS CBT therapists (neither of which were seen for 'ME-related CBT or GET', but rather after I had asked GPs for counselling to help me cope with extreme life circumstances/severe depression)...

The BMJ information looks like it may be significantly better, but a subscription is needed to view the complete text: https://bestpractice.bmj.com/topics/en-gb/277 If someone has an institutional login, this would be worth exploring in detail. I would have thought those on the NICE guideline...

As the GP training doesn't specifically cover CFS/ME and they won't have been taught it in medical school, then their knowledge is going to come from courses such as the RCGP CFS/ME one that's been discussed on other threads (and was mentioned in the ME parliamentary debate)...

I was being sarcastic when I wrote: 'I haven't read through it, but somewhere in it I presume it will say something like: For patients with 'medically unexplained symptoms', send them off for CBT and forget about them.' I probably should have used an emoji to show this.

This is the link to the latest UK General Practitioner curriculum: https://www.gmc-uk.org/-/media/documents/gp-curriculum-2019_pdf-79017777.pdf Just glancing through it, it doesn't cover specific medical conditions, presumably because all the ones a GP should be able to diagnose should have...

That's truly shocking.

Mike highlights in his blog posts that IAPT's definition of 'recovered' is clinically meaningless. He makes some suggestions for how 'recovery' should be properly evaluated, but of course these require suitably qualified therapists, whereas IAPT therapists are mostly 'Well-Being Practicioners'...