Search results

  1. Kitty

    Sarah's adventures in blocking out light

    I though that if it's inside your room, it wouldn't be visible outside? It also looks like part of normal decor, as opposed to door seals (not that any of that would bother me anyway, but it sounds as if your dad is more picky!)
  2. Kitty

    Sarah's adventures in blocking out light

    Yes, I think I'd have been equally annoyed. If he really objects to the appearance, the other potential solution is a door curtain on your side of the door. These work really well if the curtain is made of thick fabric with plenty of gathering, and is hung from a close-fitting rail (not a pole)...
  3. Kitty

    Pathophysiology of skeletal muscle disturbances in (ME/CFS): 2021, Wirth, Scheibenbogen

    If this is the meaning: "Cerebral misery perfusion (CMP) is a condition where cerebral autoregulatory capacity is exhausted, and cerebral blood supply in insufficient to meet metabolic demand." ...then misery makes more sense to me? At least inasmuch as miserly is behavioural, whereas misery...
  4. Kitty

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    Isn't it – it shows that some of us think we don't have enough information about it. I suggested it because I was struck by something @Jonathan Edwards posted a couple of months ago, re doctors learning about a disease by sitting down and listening carefully to what a group of patients tells...
  5. Kitty

    Sarah's adventures in blocking out light

    As a quick fix, if you have a big fleece throw or even a fairly thin old towel, chuck that over the door before shutting it. It'll reduce the amount of light bleeding through by quite a bit. I do this every night with one of the old throws I used to put over the bed for my cat to sleep on, and I...
  6. Kitty

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    I thought about this the other day. I saw a report on a news website about a small trial where GPs would be able to prescribe financial and welfare benefits advice, to combat the stress and depression associated with being in severe financial difficulty. If skilled advisers were available...
  7. Kitty

    Discussion of suggestions for the ME/CFS Priority Setting Partnership, deadline 5th July - extended to 7th July.

    A few basic research questions that occur to me: What are the illness patterns in ME? (What proportion have a relapsing/remitting illness, what proportion remain broadly stable as long they pace well and manage to avoid other illnesses, surgeries, and major life events, and what proportion...
  8. Kitty

    Understanding, is it necessary in every contact or friendship?

    If you ever have the emotional energy, is it worth trying to explain that you're not looking for solutions? As well as having fun, one of the things good friends do is allow us to talk about our feelings. Their role is to listen and be understanding, without trying to fix us. They don't always...
  9. Kitty

    Understanding, is it necessary in every contact or friendship?

    I'm sorry this has happened to you, @unicorn7, it's always really upsetting when a friend lets you down like that. I used to feel guilty about the fact that I'd have made a terrible friend to an ME patient when I was young. I wouldn't have had a clue, and I'm sure there would have been times...
  10. Kitty

    Dr Myhill’s complaint to GMC about PACE authors.

    If you go to this page, @Peter Trewhitt: https://www.drmyhill.co.uk/wiki/My_Complaint_to_the_GMC_about_the_PACE_authors#Text_of_my_Complaint_Letter Then click Ctrl + F (or however you usually get to 'find') and enter the following words into the search box: Complaint here as below ...that...
  11. Kitty

    Orthostatic intolerance

    It's also not unique to ME. Mine predates ME by years, and many of the numerous aunties and cousins on my mum's side of the family have OI. Quite a few of us were regular school assembly fainters in the days when you stood up throughout; as adults, we just feel ill, clammy and nauseous. As far...
  12. Kitty

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    I agree. Communities don't tend to make apologies because they're so rarely involved in negative actions as a group. Institutions do, as they are led by a small number of people who make decisions, determine policy, and are responsible for organisational culture. But the loose coalitions of...
  13. Kitty

    Psychosomatic medicine and the psychologising of physical diseases

    Of course not. The confusion often seems to be between how psychology can affect a person's experience of a condition, rather than the condition itself. Take attitudes to signs and symptoms. Sharpe and his chums deliberately gloss over the issue of which people can safely try to live with, and...
  14. Kitty

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    'Pacing up' sounds like a contradiction in terms! :rolleyes: Gradually building up activity levels after an injury makes complete sense, but you can't apply it to ME because there are always snakes as well as ladders. It demonstrates that either the practitioner or the patient is denying the...
  15. Kitty

    What Does CATS Have to Do With Cancer? The Cognitive Activation Theory of Stress (CATS) Forms the SURGE Model.., 2021, Monk et al

    In my experience, women and men can be equally adept at spotting bullshit when they see it. Same with conspiracy theories. A lot depends on age and experience. Much of this crap is targeted at women, for sure, because the institutional sexism in medicine means their health needs have never been...
  16. Kitty

    Blog: M.E. myself and I, "How baffling that I’m happy with my lot"

    I know what you mean, but it's fairly straightforward to project a different impression for a short time if you need to. I can't fool anyone who knows me well in any case; if I'm more unwell than usual, they spot it straight away. Don't ask me how! As long as they didn't change the key features...
  17. Kitty

    Blog: M.E. myself and I, "How baffling that I’m happy with my lot"

    I've never grown out of my tendency to find anger incredibly funny. People just pull the most hilarious faces! It's one thing as an autistic kid, but a bit more embarrassing as a middle-aged, so-called professional... :rofl:
  18. Kitty

    Blog: M.E. myself and I, "How baffling that I’m happy with my lot"

    Me too. Someone even once described me as the happiest person they know. Even though I have multiple chronic conditions, I still feel incredibly lucky. They could have been so much worse, or I could have been one of those people who can't find joy in the most ordinary of things. Other people...
  19. Kitty

    What Does CATS Have to Do With Cancer? The Cognitive Activation Theory of Stress (CATS) Forms the SURGE Model.., 2021, Monk et al

    No – or the radiology burns. Or having most of your chest muscle removed or rendered non-functional. Or having to lug around ridiculously heavy implants. Or the crumbling joints after all the steroids. Or the lymphoedema. Makes you wonder why some halfwit thinks they need to come up with a...
  20. Kitty

    Specifics of chronic fatigue syndrome coping strategies identified in a French flash survey during the COVID‐19 containment, 2021, Moncorps et al

    Yes, I'm snappy too when I'm at my limit, but then again I always was. The only thing different is the inability to recall the particular swear word I wanted to use, because my brain's seized. :laugh:
Back
Top Bottom