The article talks about a variety of drugs (I shouldn't have posted this when I'm so tired and can't summarise - so sorry!).
I think it's a massive concern for PwME because so many of us can barely move and are going into old age having had zero exercise, for decades. There's lots of research...
In the longer article, there was rather more to it than that (apologies again, I'm too tired to summarise, which must be very frustrating for everybody!).
This (mostly paywalled) New Scientist article says:
I've read the whole article and it's interesting. I'm very sorry but I'm too tired to summarise it properly! But basically, scientists have used drugs on mice that give them the health benefits of exercise. There are concerns about impacts on...
The MEA have always said 'one size doesn't fit all' in relation to GET, as though the issue was with not individualising the treatment. I really wish they'd drop that attitude. As you say, there's zero evidence that that's the issue, and plenty that it isn't.
It has surprised me, in the context of PACE, that in the UK at least, 'research misconduct' doesn't seem to be a 'thing' - at least, not in the sense of a crime or misdemeanour that you can be found guilty of by some sort of official panel.
I wish it was.
A friend of mine just sent me a link to the article knowing I'd be interested, and said that a friend of hers diagnosed with ME/CFS post-Covid has been prescribed GET.
How can we stop this unfolding disaster for post-Covid patients?
That's a terrible title. I hope this idea that recovery isn't the same as restoration isn't going to gain traction. This is the rubbish that the PACE authors tried to pull, that allowed them to claim that patients had recovered when they hadn't.
But that is my question! Do the vaccines protect against getting Long Covid.
I don't think so. We don't have one for ME/CFS and yet we have a symptom-based diagnosis.
Thanks - but I'm specifically interested on whether the vaccine is preventing cases of Long Covid from developing in the first place, as opposed to affecting existing cases.
Is there any data on the extent to which the vaccines prevent or reduce the severity of new cases of Long Covid? (That is, I'm not asking about their effects on existing Long Covid).
Would there be any mileage in S4ME and our charities writing to researchers in this area to try to avoid the many ME-blind stupidities coming down the pike?
@Andy - anything like this under way?
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