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Indeed. S4ME and its members are more than capable of responding to NICE without it having to be through an AfME survey. On the subject of asking people to respond to a few questions, there are a few unanswered questions around this forum awaiting your attention @Action for M.E.

Well thank goodness the job landed in the safe hands of Richard Horton then, otherwise who knows how the Lancet might have disgraced itself.

That video has just inspired me to stay on my sofa.

So after banning himself from twitter for a week MS can't resist having a little peek on Sunday afternoon. Continues to struggle with the English language, as "stastician" isn't a word. Something must have annoyed him.

I read it through in one go and thought it was excellently written, obviously with the reader in mind. I didn't read anything I would change. One of them is a woman with a fat arse on the telly and the rest of them are something to do with her.

Disappointing that AFME was allowing such drivel to be published in their magazine as recently as this year.

@alktipping just between you and me at one point I did find myself googling whether "bollocks" was a metaphor.

I don't think there's anything wrong with seeking spiritual support whether you are well or ill if that's what you're into, I'd just like to see a strict separation between spirituality and medicine. This guy seems to think that because he's a doctor, that entitles him to branch out into the...

Is there a difference between "believing the patient" and "believing in the patient"? I expect to be believed. I don't give a toss whether my doctor believes in me, that's my mother's job. Thanks, but I never thought I was, where did you get that idea from? Yes, we know, get on with it. Oh...

There is now - Sly Saint's Law

The hotel stuff was in my early 30s. The 5-years ago stuff was in my late 40s, just before I got ill.

Yes. I used to get the train to a hotel on Sunday evening, then Monday-Friday I would be with my business students from 8:15 to 21:00 or later - in the classroom, mealtimes, breaks, I was always "on" as the teacher. 4-5 days a week, get the train home, all weekend in the office preparing for the...

Thanks to the Mirror I know who killed her now.

It rhymes with Live Landmaaaaaaaaaaagh

Der Fatigatio e.V. Bundesverband Chronisches Erschöpfungssyndrom (CFS/CFIDS/ME) trauert um seine Vereinsvorsitzende Edelgard Klasing * 6. Juli 1958 † 1. Juli 2018 die völlig unerwartet und viel zu früh aus unserer Mitte gerissen wurde. Edelgard Klasing war eine außergewöhnliche...

I have just received an email that Edelgard Klasing has died.

"seriously threatened"? Who are the militants? If people with HIV/AIDS have the energy to run around throwing blood, invading offices etc it's understandable because they were going to die. If people with ME have the energy to raise their voice, let alone stand up and walk around, they "can't...

Well it was either that or "bedridden".

Articles like this are usually for publicity, either to further a career as a burlesque dancer, promote a self-help book about a miracle cure, or whatever. In this case she is trying to raise money - both the pictures have a "Just Giving" stamp on them, and there is a link to where you can...