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    What they mean by evidence based medicine.

    I've tried it. It's quite a fun experiment. Sat in front of a specialist who was spouting pure tripe straight from The BPS Guide to the Galaxy with the phrase Evidence Based Medicine sprinkled on top. Let him go for a bit and when he paused asked - "Whose evidence? Can you give me a list of...
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    Pacing - definitions and sources of information

    Haven't read through your updated document yet but - I would also suggest extending that window the other way - for me PEM can take up to 72 hours (3 days) to appear. If I haven't suffered ill effects by then I've gotten away with it.
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    Lancet editorial (2020) 'Complicit silence in medical malpractice'

    And if a wet behind the ears, freshly trained nurse could see that then everyone else could too. So what stops people from coming forward? Should there be penalties if they don't? (I'm not aiming those questions directly at you @Milo :)) I've worked in the same company as others doing the...
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    Lancet editorial (2020) 'Complicit silence in medical malpractice'

    I think the get out clause there would be that the pharmacist should ask if you've ever used the drug before and you should receive a copy of the patient information leaflet with the prescription. I'm not saying that's necessarily enough, mind. Just that this is probably how they would cover...
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    Coronavirus - worldwide spread and control

    My father was a big fan of salt water gargling. The nanosecond you thought you might be coming down with something out would come the salt.
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    BBC short video: Chronic fatigue syndrome: Living with an invisible illness

    My immune system is definitely not right, but I don't know that it's too strong or reactive or whether it's "low". I'm not sure what that means. If it comes up I tend to say my immune system doesn't seem to function normally.
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    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    :hug: @JellyBabyKid. I completely agree. GPs need to be properly educated about ME and I mean properly.educated not this MUS /IAPT shite. Most of them have zero concept of how much suffering is caused because, while they usually see patients when they're sick, they only see ME patients who...
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    Another example of claim of a 'cure' - Reverse Therapy and Mickel Therapy

    Yeah, there was a documentary a few years ago in which the Mickel therapy featured. Nasim Marie Jafrie was in too (she wasn't supportive of Mickel but was giving general background). edit - link to MEA page about the documentary with links to it. The documentary itself is in two parts -...
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    Easy ways to donate time

    It's not an online thing but at one point I had a neighbour from a large family with a couple of small kids of her own. One Christmas she was really stressed so I decided to give her the gift of some "time". I wrapped & labelled all her Christmas presents for her. I know that's a seasonal...
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    What they mean by evidence based medicine.

    Yes. Prof Sir Roy Meadows springs to mind. Mothers, already suffering the loss of a child, then being blamed and incarcerated for it. I remember watching a documentary about it and a pathologist who had also given court evidence in at least one case saying well, that her evidence was based on...
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    UK Action: Ask CCGs to buy MEA Purple Books for GP Surgeries

    What the GPs study may not be entirely up to themselves though. It may be stuff they have to do to keep current, or be obliged to do by their CCG. I should imagine they have more study material than they have time to study it. I had ridiculous amounts of manuals and study mater - such a...
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    What they mean by evidence based medicine.

    Interesting to compare with the likes of PACE to see the difference. Is the issue with the definition of EBM or the way "experts" abuse their credentials with impunity by attaching the label EBM to any old convenient piece of garbage? I would suggest it's the deliberate attempts by "experts"...
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    CoQ10 - Coenzyme Q10

    Not sure whether anecdotal information is what you want, but if it helps... I was advised to try CQ10 shortly after I first became ill. I spent a few months on it as I recall. I didn't notice any difference at all so it was discontinued.
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    Multiple physical symptoms and individual characteristics – A cross-sectional study of the general population, 2020, Rasmussen et al

    Yes, I think she meant if you haven't already developed a smoking related disease. I smoked for 10 years. In at least the last 5 years I had a 20 a day habit and on a rough day that could easily go up as high as 30. She reckoned that once I hit the 10 year mark off the cigs (& presumably not...
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    News from Scandinavia

    My condolences to her friends and family. This is not the first person who has taken drastic action to avoid further so called "care" of the mental health professionals who have been involved in their case. Long past time for psychiatry to take a long hard look at themselves and the harm they...
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    Multiple physical symptoms and individual characteristics – A cross-sectional study of the general population, 2020, Rasmussen et al

    Bolding mine. Former smoking, really. How long is former? A month? A year? A decade? 25 years? I am a former smoker. I decided to see how long I could go without smoking over a quarter of a century ago. I was talking about it with a GP who was curious about how I quit & stayed off 'em...
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    UK Times:'What if the thing that’s making you physically ill is your mind?', Feb 2020, Rumbelow [includes ME]

    Agreed. I would also love to know how they can be so blind or stupid not to see that colluding with this crap will ultimately lead to the perception that fewer GPs are needed, rather than simply taking some burden off busy GPs. Many of the young GPs starting out might find their job disappears...
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    Sun UVB vitamin D lamp - cheap and cheerful DIY

    I'd probably best steer clear then. Ive been known to get burnt just staggering to the washing line and back. In England, in April. :rolleyes:
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