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Extract from SOLVE ME, IACFS/ME, #MEAction et al's proposal: It's 6 years on since the IOM panel published its report, in early 2015. The report should have contained a far stronger caveat that its Recommendations were just that - recommendations for the sponsor agencies to review and give...

I'm afraid you've missed my point about classification system "terms" (as opposed to "diseases"). My point was this: "Myalgic encephalomyelitis" is a unique, machine readable ICD term (or entity). "Chronic fatigue syndrome" is a unique machine readable ICD term (or entity). "Myalgic...

From the Diagnosis Codes Topic Packet: September 14-15, 2021 The September 2021 ICD-10 Coordination and Maintenance Committee Meeting is fully virtual by zoom and dial-in. September 2021 Recordings and slide presentations of the September 14-15, 2021 ICD-10 Coordination and Maintenance...

Please see thread: Updates on status of ICD-11 and changes to other classification and terminology systems https://www.s4me.info/threads/updates-on-status-of-icd-11-and-changes-to-other-classification-and-terminology-systems.3912/page-25#post-373852 for the Rationale for this proposal in the...

The Diagnosis codes agenda for this coming week's ICD-10-CM Coordination and Maintenance Committee Meeting has now been released. Please see thread: Updates on status of ICD-11 and changes to other classification and terminology systems...

ICD-10-CM Tabular List structure as it would look if approved and implemented (NCHS alternative Option, as included in Topic Packet): ICD-10-CM Tabular List, Chapter 6: Diseases of the nervous system G93 Other disorders of brain [existing Category code] G93.3 Postviral and related fatigue...

Note: The NCHS proposal (as set out in the Final Agenda) calls for the existing ICD-10-CM Inclusion term: R53.82 Chronic fatigue syndrome NOS in the Symptoms, signs chapter to be Deleted. If a term is deleted from ICD altogether, there may be an issue with loss of legacy data going forward for...

The next meeting of the NCHS/CDC ICD-10-CM Coordination and Maintenance Committee takes place on Tuesday and Wednesday this coming week (14-15 September): https://www.cdc.gov/nchs/icd/icd10cm_maintenance.htm The Final Agenda (Diagnosis Codes Topic Packet) is now available...

And here: Updates on status of ICD-11 and changes to other classification and terminology systems https://www.s4me.info/threads/updates-on-status-of-icd-11-and-changes-to-other-classification-and-terminology-systems.3912/page-25#post-372175

NICE confirmed today that the timing of the roundtable has been changed from September to October: The announcement on 27 August: https://www.nice.org.uk/news/article/nice-announces-next-steps-for-me-cfs-guideline was updated, today, with: Updated: 10th September, to change the month of the...

I don't know, but some of this positions might be part-time, which may appeal more to women than to men.

For AfME Trustees - 13 in total. 9 men and 4 women. For comparison: Doctors with ME's "Honorary Fellows" - currently 14 men and a sole woman (there would have been an additional woman, but I declined the invitation.)

https://www.thegracecharityforme.org/wp-content/uploads/2016/10/SAYING_-NO_CAN_BE_POSITIVE_updated-2017.pdf SAYING NO CAN BE POSITIVE Spring 2006 (updated 2017) (...) 19) The 2002 CMO’s Report recommended CBT and Graded Exercise Therapy despite the objection of two patient support groups. The...

https://www.theguardian.com/society/2002/mar/30/health.lifeandhealth Battle fatigue Jerome Burne, 30 March 2002 ...A glimpse of the infighting behind the scenes was provided by the resignation of six of the working group just before publication, together with a few bland comments by the CMO...

@Ariel I'm afraid I don't have a list of the names of all those who refused to endorse the final Report of the CMO's Working Group on CFS/ME. I was looking for a list a few weeks ago. If anyone has a list, I'd be grateful if their names can be added to those of: Dr Alison Round Dr Peter White...

https://www.meresearch.org.uk/wp-content/uploads/2012/11/UnhelpfulCounsel.pdf Unhelpful Counsel? MERGE’s response to the Chief Medical Officer’s Working Group report on CFS/ME April 2002 (...) Page 15: In total, six members (46%) of the Key Group refused to endorse the final report, a...

Much of the content on these KCL pages is very old. Deary has long since moved to another institution. The text by Mary Burgess PhD - based on the work of Pauline Powell: https://www.kcl.ac.uk/ioppn/depts/pm/research/cfs/patients/physiology is also very old. I contacted Deary some years ago...

I am fully aware of that. My response specifically addressed your comment: "When the term is used by US doctors in medical records, NCHS has said they need to provide a way to code it. NICE's draft guidance has also adopted the term ME/CFS. If that is ultimately adopted, I'd expect this could...

The previous NICE guideline (Clinical guideline [CG53] Published: 22 August 2007) used the term "Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy)" and the acronym "CFS/ME". The conjoining of these two terms for the NICE guideline caused no difficulties with coding using...

The "GAS" and "GAS-Light model" documents are on the KCL website: https://www.kcl.ac.uk/cicelysaunders/resources/tools/gas GAS - Goal Attainment Scaling in Rehabilitation GAS is a method of scoring the extent to which patient’s individual goals are achieved in the course of intervention. In...