Search results

I feel I should mention that Fibromyalgia has lost its discrete code for ICD-11. For ICD-11, Fibromyalgia was relocated in May 2015 under the new Chronic primary pain block in the Symptoms, signs chapter. Rather than being assigned a new code in its new location, it is now rolled up an inclusion...

Yes, some agencies do use two acronyms hyphenated together on their website texts, for example. In the case of NICE, using "CFS/ME" or "ME/CFS" isn't particularly problematic from a classification perspective, since NHS England uses the WHO's international edition of ICD-10 and CFS and BME...

For what it's worth: From a classification and terminology perspective: Neither the WHO, Geneva, nor the U.S. ICD-10-CM (developed, managed and updated by NCHS-CDC), nor the Canadian Institute for Health Information (CIHI), nor the Australian Institute of Health and Welfare (AIHW), nor...

I continue to be concerned by the number of errors I find on MEpedia pages regarding terminology and classification. Why are authors of these pages not fact checking before they add content? Why are they attempting to author content if they are not equipped to do so ? What is the point of...

[Canada] Canadian Institute for Health Information (CIHI) ICD-11 Frequently Asked Questions https://www.cihi.ca/en/icd-11-frequently-asked-questions According to the FAQ page, no decision has been made regarding the implementation of ICD-11 in Canada. CIHI is in the process of assessing...

Jen's focus is now very much on CCI.

Their income is similar to that of TYMES Trust. TYMES Trust: https://apps.charitycommission.gov.uk/Showcharity/RegisterOfCharities/CharityWithoutPartB.aspx?RegisteredCharityNumber=1080985&SubsidiaryNumber=0 I'm always surprised that TYMES Trust (with umpteen Peers, MPs, titled folk and celebs...

Charity Commission Register: https://apps.charitycommission.gov.uk/Showcharity/RegisterOfCharities/CharityWithoutPartB.aspx?RegisteredCharityNumber=1077807&SubsidiaryNumber=0 (They are below the 10K threshold for having to provide Year End Accounts. Financial year end (FYE): 31 Mar 2019...

Their logo is "The Chronic Fatigue Society" !!!!

"We can run self-management courses for CFS/ME sufferers – these courses entail a two and a half hour session once a week for six weeks. We have just started half-day sessions on happiness for CFS/ME patients. Please get in touch if your [sic] interested. Improving understanding of the...

The Daily Mail is all over the place with its coverage of ME - some of it's been pretty good, some bad. In July 2006, journalist, Gill Swain, had written a long article about Lynn Gilderdale, who died in December 2008...

The paper mentioned in the last slide, in post above: https://www.researchgate.net/publication/320253748_Novel_primary_care_treatment_package_for_patients_with_medically_unexplained_symptoms_a_cohort_intervention_study PDF...

Split thread Apologies if this MUS PowerPoint presentation has already been posted in another thread: https://static1.squarespace.com/static/56dad929c6fc08b99108a046/t/5984458415d5dbb2e64041d0/1501840777398/MUS+training+for+GPs+TH+030817.pdf ( Copy archived here...

A little graphic if anyone wanted one for Facebook: World Health Organization retires "Benign" from "Benign myalgic encephalomyelitis" for its final update to ICD-10 https://icd.who.int/browse10/2019/en#/G93.3 Dx Revision Watch report: https://wp.me/pKrrB-56g This decision by the WHO-FIC...

[Australia] The Australian Institute of Health and Welfare (AIHW) is scheduled to release ICD-11 Review stakeholder consultation report on March 12, 2020 https://www.aihw.gov.au/news-media/forthcoming-releases

If the external ICD-11 Neurology work group and its internal managing editor had had its way, CFS would have replaced PVFS as the Concept Title (lead) term for ICD-11. And CFS and its proposed inclusion, (B)ME, would have been relocated under the Symptoms, signs chapter under Symptoms, signs or...

To be honest, Adam, I've been doing this for so long, now, that as far as I'm concerned, they can go and boil their own heads. I just don't have the time or patience for them.

And the irony of dismissing me as "...Toxic, patronising and lacking in any sort of consideration." because I objected to the use of "...older, longer suffering MEeps, obsessed with the history and politics of the disease." was not lost on those familiar with my work and what I have achieved in...

Indeed. But my objection was to the suggestion that having knowledge of, or interest in the history and politics of ME equated to "obsession". As I politely pointed out to these individuals, you cannot take the politics out of ME and the history is crucial for context, whatever position one holds.

That's about it, yes.