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Looks promising— not sure why Pfizer didn’t follow up.

Comments on the above {crappy} NYT article are open now—please make comments about MECFS—thanks.

Safety and efficacy of amantadine, modafinil, and methylphenidate for fatigue in multiple sclerosis: a randomised, placebo-controlled, crossover, double-blind trial https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(20)30354-9/fulltext

https://www.cbssports.com/nba/news/mo-bamba-still-dealing-with-covid-19-symptoms-despite-june-diagnosis-theres-no-timetable-on-his-return/ Mo Bamba still dealing with COVID-19 symptoms despite June diagnosis: 'there's no timetable on his return'

Bump. Take Zuck’s money.

@Trish can edit to incorporate your option and hers.

Merged thread From email We have a unique opportunity to share with you: Donate to OMF’s Facebook Fundraiser on Tuesday, Dec. 1 (International Giving Tuesday), and have your gift matched by 6x! When you donate to our #TripleGivingTuesdayOMF Facebook Fundraiser tomorrow, Facebook will match...

Ok to edit as you like.

I’m intrigued by MECFS patients with no brain fog....seems like they have a better prognosis. I think under IOM you can be diagnosed without cognitive issues.

Do you have brain fog (e.g. impaired concentration, cognition, etc.)? 1) Always, almost always 2) Only during PEM, otherwise I am normal 3) Never, almost never (e.g. can read long complex books with no issues) 4) Sometimes

Sorry for slightly off topic post but, I thought we were interested in cyclophosphamide due to its effect on T-cells? E.g. https://www.sciencedirect.com/science/article/abs/pii/S0305737215002030

This is a bit harsh, I think. By a proper trial, I assume you mean a RCT trial? 1) Personal accounts are valuable because they can point researchers in a direction so that they can conduct controlled trials!! 2) The overwhelming emphasis and energy on this forum is on "combating" gaslighting...

HHS and the Steven & Alexandra Cohen Foundation Announce $25 Million “LymeX” Innovation Accelerator – Largest Lyme Public-Private Partnership in History https://www.hhs.gov/about/news/2020/10/10/hhs-steven-alexandra-cohen-foundation-announce-25-million-lymex-innovation-accelerator.html Some...

Another reason is that MECFS never had a breakout viral campaign like ALS did. This raised over 100 million USD. https://www.cnn.com/2020/11/22/us/pat-quinn-als-ice-bucket-challenge-dead-trnd/index.html

https://immunology.sciencemag.org/content/5/53/eabc7191

Threads by Robert Phair and request to monitor thermoregulation. https://forums.phoenixrising.me/threads/a-community-thermoregulation-experiment.82096/ https://forums.phoenixrising.me/threads/thermoregulation-and-body-temperature.82073/page-2#post-2308614