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Bhupesh tweeted this today with a follow up tweet that one of them was about ME/cfs.

How brave of Mattie to tell how it is for him, because i imagine there is pressure and investments in that surgery being effective and curative. And how devastating when the symptoms return, or realizing the symptoms never went away but were brushed off as something else.

Thank you for sharing @Tom Kindlon and yes @rvallee it is also my experience, my GP is doing the bare minimum, and it would be very difficult to find a doctor willing to accept a patient with a chronic disease, let alone a patient with ME. The biggest problem i have with GP’s managing ME...

Can i roll my eyes? :rolleyes: The irony.

Yup yup. Catastrophizing. She has also insulted women in labor.

Vincent Racaniello made an appearance on CNN in Erin Brunett’s show to discuss Coronavirus

Wearing a mask provides a false sense of security. People touch their face hundreds of times a day without even thinking about it. Touching your mask would provide the same opportunity for the virus to infiltrate and find its way to your mucous membranes. Moreover the humidity that your breath...

@Mithriel their specialty is unexplained and unidentified pathology.

Catastrophizing goes around in pain self-management programs and in pain research. They believe that patients’ thoughts make their pain worse. It also appeared in a research questionnaire for a non-related surgical follow-up. I didn’t like that, and since i made comments on the questionnaire...

Well done @Hutan. Women are in general responsible for caring for their children, elderly parents, the household, and then they have a job. If you get injured or take a sickness leave from work, these days, you get forced into a return to work program. Then you return home and you still have to...

Why are women targeted in this instance of musculoskeletal pain? Are men treated differently, is it that their pain more legitimate compared with women? it seems like an invitation to stigmatize and treat women’s pain differently, through psychology rather than physical injury.

Certainly, the more food restrictions one has, the more chances for nutrient deficiencies. But again my point is regardless of what we eat, we are still sick.

i am sorry @leokitten. I think that regardless of how long we’ve been sick, we are yearning of recovering normal function and to be well enough to be our old selves again. It’s heartbreaking that scientific advances are so slow, that people are so sick and that it’s so difficult to access...

This is a rehab, CBT, GET program. i wonder what happens with the children that cannot keep up with this regimen and who cannot achieve the goals despite doing all they can to reach them? Are they ostracized and are they punished by removing access to care and services?

I would believe that metabolomics would inform how functional each individual is in terms of converting food into glucose. I would presume that for some, breaking down fats is next to impossible, and if coupled with further difficulty in other ways of obtaining glucose, then that person would...

Long-term effect of cognitive behavioural therapy and doxycycline treatment for patients with Q fever fatigue syndrome: One-year follow-up of the Qure study (2018) Ruud P.H. Raijmakers, Stephan P. Keijmel, Evi M.C. Breukers, Gijs Bleijenberg, Jos W.M. van der Meer, Chantal P. Bleeker-Rovers...

The ME/FM Society of BC is excited to announce a 20,000$ grant from the Vancouver Foundation to study the needs of patients living with ME in British Columbia, in collaboration with The Complex Chronic Diseases Program at BC women’s Hospital and Women’s Health Research Institute. It would mean...

Dietary Supplements Pose Real Dangers to Patients Full text here Abstract The Dietary Supplement Health and Education Act led to a flood of poor-quality dietary supplements. The Food and Drug Administration’s (FDA’s) jurisdiction is limited to removing products proven unsafe, rather than...

She’s a podiatrist?!?

Well, these folks interpret the research their own way, pick and choose whatever makes sense to them and their business. Their goal, making money and gaining influence to gain more money.