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I was just commenting on a post on FB about a new patient with ME that is also experiencing shortness of breath (she did not mention whether she had COVID or another onset). My onset was EBV. I started having shortness of breath perhaps 10 months after onset. It was not an out of shape thing...

CNN was playing this evening the news that the UK is recruiting young volunteers to be inoculated with COVID-19 after receiving either a vaccine or a placebo. I have no word. These young people do not know what they risk. Here is the story...

Claims of recovery and selling supplements to desperate patients gets you a ticket to a by invitation-only conference. :confused:

i do not disagree with you, and i would say we are still in the early days, where very little is known but no more than 7 months has elapsed since getting infected. Those who still have lingering symptoms may still be on their way to recovery. Then, persistent and long-term symptoms may not have...

Who is Forward ME ? Are there doctors in that group? I am very pleased about this statement. A breath of fresh air.

https://www.nih.gov/news-events/news-releases/nih-intramural-researcher-dr-harvey-alter-wins-2020-nobel-prize-physiology-or-medicine

Dr Alter if i remember well, was the chairman of a ‘State of the knowledge’ conference that gathered all the ME experts around 2011 or 2012. He is a compassionate man and was extremely professional and highly respected.

Nobel Prize in Medicine won by Harvey J. Alter, Michael Houghton and Charles M. Rice for discovery of Hepatitis C Some of you may recognize Harvey Alter who was involved in ME research in the XMRV times, and Michael Houghton from Alberta, Canada was also involved in ME research...

When i was diagnosed with EBV i have asked my dr for anti-virals and she said no. Almost 12 years ago.

So here in Canada, 110 millions for COVID has been allocated for research - most of it would be for vaccine development, infection control, and bio research. it would be fair to think that some of this research money or additional money will go to Long-COVID, but not to ME. In my view...

The one thing i’d consider is how much free time you have every day, whether your energy fluctuates, What you really want to do (make a priority list) and test your response to the activity, whether it makes you crash or not. Monitoring would be important to ensure you are not ever exerting in...

So in the hypothetical that a program already exists for ME patients, should there be a separate program for Long-COVID patients? This is in the context of socialized medicine where patients with ME are treated with CBT and symptom management. Why or why not? Please discuss.

Thank you for receiving and sharing the feedback @Andy. Nothing is ever perfect, and if it’s the only problem this team is encountering, it will just be peachy!

I deleted my previous post. I received the following message yesterday, but no link to survey. Could it be because i am out of country? Edit: from post above, yes, because i am not from UK. It may be necessary to mention UK residents only. Thanks again for signing up to receive updates on...

Abstract In a recent paper, Sharpe and Greco (2019) argue that some clinical conditions, such as chronic fatigue syndrome (sometimes called myalgic encephalomyelitis), should be treated by altering the patient's experience and response to symptoms without necessarily searching for an underlying...

@MSEsperanza your tags are fine, and i could never have known english is your second language!

Not sure why you would not want to promote Ernst’s blog, as i tend to agree with him.

Merged thread As Their Numbers Grow, COVID-19 “Long Haulers” Stump Experts This is a journalistic piece regarding Long COVID which discusses symptoms and experiences of patients living with Long-COVID including Dr Mady Hornig who researches ME as well. The article also includes the issue of...

i wish we could remove the ‘chronic illness’ status by actually finding what the heck is wrong with us, and how to make it go away.

The paper: The FUTUREPAIN study: Validating a questionnaire to predict the probability of having chronic pain 7-10 years into the future Abstract: Objectives: The FUTUREPAIN study develops a short general-purpose questionnaire, based on the biopsychosocial model, to predict the probability...