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article in german https://www.tagesschau.de/inland/mecfs-erschoepfungssyndrom-107.html includes video of #MillionsMissing in Munich google translate https://translate.google.com/translate?hl=en&sl=de&u=https://www.tagesschau.de/inland/mecfs-erschoepfungssyndrom-107.html&prev=search

Carol Monaghan at 26.00 ish and again around 41.00

Local Man Testifies To Senate Panel About ME/CFS May 10, 2019 full article here https://www.whmi.com/news/article/local-man-testifies-to-senate-panel-about-me-cfs

full blog here http://www.broadagenda.com.au/home/millionsmissing-gender-bias-adds-to-the-burden-of-disease/

eta: this was yesterday #MillionsMissing was at number 11. see this post https://www.s4me.info/threads/may-2019-awareness-week.8142/page-2#post-167184 to see time for your time zone to blitz social media

Pretty awful article imo. Includes quotes from SC AfME, and the MEA making the psych vs physical point. Also links to MERUK and the CDC. Very muddled mish mash. Not the best kind of 'awareness raising'...

I did wonder if they maybe had taken an Eric Morecambe approach; all the right [data], not necessarily in the right order :geek:

https://www.bbc.co.uk/news/uk-wales-48229907

re the discussion about sleep (but not directly related to v.severe); in a lot of the NHS literature, and info from the BPS proponents, they often say that X,Y,Z are 'normal' responses to exercise/activity, and that it will help you sleep. It would be useful, if only to prove this presumption...

might it not be worth someone contacting the 25%group for input on this? https://25megroup.org/ https://25megroup.org/contact-us

hmm

it's been fixed. no harm done :D

take the 'watch' bit away and there's not much difference.

part 2 eta: spaces removed

Struggled with this transcript. Can't hear properly/understand some of what Dr Whittaker says. I've removed a lot of 'you know's 'right's and 'likes' to try and make it easier to read, but there are a number of places where I couldn't figure out what exactly she was saying. So there are quite a...

I'm surprised that they didn't spot it. The £5m (or sometimes $8m is used in US publications) is all over the place (a lot of headlines too). Good reference source is me-pedia https://me-pedia.org/wiki/PACE_trial @Russell Fleming

typo? "There are few in the ME/CFS community who have not heard of the PACE Trial. This £1.5 million clinical trial"

on it

if you google posters for meawareness you might get some ideas eg