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IAPT Haemorrhaging Clients " IAPT in its’ pilot projects is expanding ‘IAPT care’ into the medically unexplained symptoms (MUS) field (see link below). Despite the concept of MUS being jettisoned from DSM-5 [American Psychiatric Association (2013)] – in a radical departure from its’...

"Wearing the symptom suit was eye-opening, but I was glad I could step away from it and felt grateful I didn’t have to live through this experience every day." "I couldn’t imagine what it would be like waking up in the morning and not knowing if today was a good day, where I would be able to go...

"burn patients who suffer from infections are more likely to develop CFS compared with control groups." "Deformity of the face and hands and disabilities are often prevalent in patients with large TBSA of burns; consequently, depression, anxiety disorder, and PTSD were also reported in this...

thought this might be of interest: https://uk.cochrane.org/get-involved " Write a Cochrane Review Information on proposing and registering a new Cochrane Review can be found here and a list of the Cochrane Review groups can be found here. Three Cochrane Trainees reflect on their experiences of...

I didn't write the article!

A bit dismayed/disturbed to hear CofM refer to ME and others (Fibro IBS etc) more than once as MUS.

BACME guidelines (linked to all over NHS sites etc): "Once a diagnosis has been made, patients should be considered for further evaluation to see if they would benefit from the evidence based treatments (CBT–cognitive behaviour therapy and GET –graded exercise therapy)." Removal of just this...

You can access one on Youtube (it took me a few minutes to figure out how), but it is not very accurate, to put it mildly. Would people like a transcript?

10,451 bumping this in case there are members who haven't signed yet

138,611 signatures so far

"The scientific success of any hypothesis depends upon clarity about the question the hypothesis is proposed to answer. Similarly, the scientific success of any conceptual construct depends upon clarity about the purpose the construct is intended to serve, and proof that the construct does...

wordpress iafme https://iafme.wordpress.com/

Retha Viviers on living with ME @Retha Viviers edit: re trishes comment below I had the same problems and found a couple of Rethas other videos but they appear to use the same graphics.

I don't think much will improve until the medical establishment are firmly on 'our side', followed hopefully by the general public. Undoing a narrative that has been spun over many decades will not happen overnight unless there is a real major uncontestable breakthrough. As I see it, the...

Australian Greens MP, Adam Bandt, formally tabled a petition for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) in Parliament on Dec. 4th. rest here: https://www.meaction.net/2018/12/05/australian-mp-introduces-petition-for-me-in-parliament/?mc_cid=8ba21b5cef&mc_eid=c1fdea04b1

Jessica Bavinton is on the BACME Executive Committee: Jessica Bavinton Founder Director Vitality360 Limited & Specialist Physiotherapist - BSc (Hons) Physiotherapy, MCSP, PVRA, HG (Dip), MBACME Jessica is a national therapy leader in the field of CFS/ME, and was nominated to participate...