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Genetic Predisposition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Pilot Study Melanie Perez1, 2, Rajeev Jaundoo1, Kelly Hilton1, 2, Ana Del Alamo1, 2, Kristina Gemayel1, Nancy G. Klimas1, 2, Travis J. Craddock1, 3* and Lubov Nathanson1, 2* Provisionally accepted; full text...

#MillionsMissing South Carolina: ME Awareness Day Press Conference article referred to https://www.postandcourier.com/features/people-in-sc-may-have-this-fatigue-causing-illness-it/article_7d95a8c2-6c1b-11e9-9e17-6347b3ab9a1e.html

https://clinicaltrials.gov/ct2/show/study/NCT02854683

@Carolyn Wilshire

The Improving Access to Psychological Therapies (IAPT) Pathway for People with Long-term Physical Health Conditions and Medically Unexplained Symptoms from March 2018...

other threads on ACT https://www.s4me.info/threads/acceptance-and-commitment-therapy-for-muscle-disease-actmus-protocol-for-a-two-arm-randomised-controlled-trial-of-a-brief-guided-self-help-act-prog.5597/ https://www.s4me.info/threads/sweden-act-for-me-cfs-an-open-case-trial.4684/

I found this Youtube video of Ron Davis life fascinating. I don't think a lot of his current critics are fully aware of his previous achievements.

retweeted by Michael Sharpe (!?) it takes one to know one

https://themighty.com/2019/05/missing-out-life-chronic-fatigue/

all the videos from that conference plus many, many others on dedicated S4ME thread https://www.s4me.info/threads/me-videos.1030/ eta: summary of the conference by Charles Shepherd http://www.investinme.org/Article-170 RSM Conference Summary.htm eta2: transcript of first 6 minutes by Suzy...

I asked the OMF about testing GWS patients last September. https://www.s4me.info/threads/ronald-w-davis-phds-presentation-at-the-iimec13.5793/page-4#post-106159

Interview with Tina Rodwell starts around 9.30 ends 24.00 (before then music and political stuff); not sure about the accuracy of the 'facts'. Around 17.00 talk about #Millionsmissing, POTS (postural orthostatic tachycardia syndrome), NICE guidelines. after that it's all re news/politics...

They replayed some of the interview with Dr Glaser (from previous programme) see https://www.s4me.info/threads/on-bbc-morning-there-was-a-mum-and-daughter-talking-about-fii.8523/#post-149504 ME comes up around 11.20 (interviewer says ME makes 'children who have it feel extremely lethargic')...

I think the caption under the third photo is wrong. Isn't Merryn on the RHS? (caption says Amy)

@Mark Vink thank-you so much for this long overdue analysis of the ME/CFS CBT rubbish so often cited as 'evidence' of 'proven' effectiveness of treatment.

Where do you start? :laugh: Unless that was a sarcastic question, you have a lot of catching up to do. suggest you start here https://me-pedia.org/wiki/Simon_Wessely then maybe do a search here on his name.

MAGENTA ?

[these threads might be of interest] https://www.s4me.info/threads/why-are-the-majority-of-pwme-rarely-mentioned.7732/ several scales (including hummingbird where cognitive and physical are split) on this thread https://www.s4me.info/posts/106919/ I think one of the big problems with all these...

posting this here as @RuthT might know people who may be interested Oct10 Minstry and ME/Chronic Fatigue Syndrome by Diocese of York https://www.eventbrite.co.uk/e/minstry-and-mechronic-fatigue-syndrome-tickets-61286233775

https://civilservice.blog.gov.uk/2019/05/03/personal-disability-stories-10-kays-story/