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could someone maybe tweet this for this: https://www.s4me.info/threads/nov-29th-youngheartsday-for-kidswithme.6922/ be nice to show some international solidarity.

Thread on IAPT here: https://www.s4me.info/threads/the-iapt-pathway-for-people-with-long-term-physical-health-conditions-and-mus-full-implementation-guidance.6948/

Yes.........but then along came the PACE trial..........

ME/CFS guidelines. Michael Sharpe has been saying more and more that he doesn't think ME and CFS are the same, and that PACE was on CFS (although the literature would suggest otherwise). A big one for NICE then..........if they are including CFS under MUS, does that include ME? Or indeed...

From FB: Voices from the Shadows A moving, informative and beautifully presented new website by advocate Naomi Whittingham, with her collected writings and much else... Words from a Hidden World Alive but barely living: the severity of ME is rarely acknowledged in the mainstream media...

taken from the MEA review

I can think of one CFS 'researcher' (who has a thing about cake) who might fancy herself in the Mary/Pru role :emoji_bug::emoji_cake:

Manchester CFS/ME Service for Children and Young People http://www.cmft.nhs.uk/childrens-hospitals/our-services/harrington-building-specialist-services/cfs-me this is their Information For Young People and their families: http://www.cmft.nhs.uk/media/1413807/cfsme%20info%20patients.pdf (out...

@Andy @Adrian FB, tweet 'official' S4ME supporting Tymes Trust and thinking of all the kids, including link to donate to Tymes? eta: also people could add messages of support on this thread and you could post a link of the thread?

I had a dig around earlier today and it appears that it's down to the CCGs (ie not NHS England). It makes it very complicated to try and find out as a lot of them would include ME/CFS under IAPT.

just wondering if we could do something to show our support?

glad someone's picked this up

Interview in the Guardian. full article here: https://www.theguardian.com/tv-and-radio/2018/nov/12/i-was-preety-much-mute-at-school-the-bake-offs-kim-joy

"that had failed in baboons, or were tested only on pigs and dead bodies" ah well you see, until they start trying out CBT on baboons, pigs and dead bodies........ eta: mind you, if they did, I'm sure they would still get positive results.

Xmas Appeal: ‘Orchestra’s, Elephants, Jigsaw puzzles and Mountains!’ An interview with Dr Charles Shepherd | 23 November 2018 In this interview, Dr Shepherd explains why M.E. research is so important, and why he is asking for your support for the Ramsay Research Fund Christmas Appeal. Helen...

How Jenni, 19, fought back from chronic fatigue illness " But she says help from the charity ME North East - which is facing a funding crisis - was crucial. She said: “Just having someone to talk to through the charity was so important for me to learn, grow and not feel so alone. "They also...

Child and Adolescent Mental Health Services (CAMHS), Specialist Intervention Team at Newland House - NHS "Complex mental health disorders might include: • Acute psychiatric illness (such as bipolar disorder or schizophrenia) • Anxiety / generalised anxiety disorder (GAD) • Attachment disorder...

https://raisingchildren.net.au/guides/a-z-health-reference/cfs interesting that they seem to assume it only affects girls(?) "Your child should see a doctor if she seems extremely tired all the time, and her tiredness doesn’t have an obvious cause."