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petition now at (drumroll please) .......... 62,856 eta: petition: " Please clamp down on Atos, Capita and Maximus and make sure they: - Don't make anyone travel for more than 90 minutes to a PIP or ESA assessment - Don't require an expensive letter from a GP to prove someone can't make the...

Fictional book " Girl in the Window Kasia in ‘Girl in the Window’ has M.E. and is housebound. She has not been downstairs for the last ten weeks. “Nothing ever happens on Kasia’s street. And Kasia would know, because her illness makes her spend days stuck at home, watching the world from her...

" One of the ME Association’s recent research initiatives was to critically examine the theoretical basis and clinical application of the use of Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) in ME/CFS. We felt that a closer examination of these therapies was vital...

I emailed the HRA on this issue last year (Sept 2017): I got a fob off from them: I did write back to clarify but got no further reply. hope @dave30th has more luck

I see the NGC are also currently doing the guidelines for Suspected neurological conditions: https://www.nice.org.uk/guidance/indevelopment/gid-cgwave0800/documents

Comment added Nov 5: "The closest fit is probably the Multiple Sclerosis and rare diseases of the CNS? However, given that ME/CFS is thought to be more prevalent that multiple sclerosis and is not rare, it doesn't really fit into this group. Will a new Cochrane Review Group, be made for...

yes, and you would hope that the ME 'experts' were as well, particularly the ones doing 'research'....:rolleyes:

Just going to post things re CB as I find them; this is the Scottish School of Primary care write up on Recognising and Managing patients with MUS (Chronic fatigue, without the syndrome, is mentioned) the interesting bit is that at the very end it notes that "NICE Chronic Fatigue Syndrome...

explains why C.Burton deleted his twitter account. But presumably there is nothing to stop any of them mentioning things that are discussed to outside 'associates' who are free to put out whatever they like on social media. I think this condition is a bit counterproductive if NICE are really...

Also, don't people generally (ie not pwME) sing in the shower in the morning (ie when they want to wake up), not at night when they want to go to sleep!

Re C. Burton Been having a look. He has worked quite a lot with Sharpe...haven't counted how many papers but there are a fair few. There is this with: Burton, C. Knoop, H. Popovic, N. Sharpe, M. Bleijenberg, G. http://eprints.whiterose.ac.uk/120507/ his association with Per Fink might be...

this article may be of interest: Mark your calendar: All infectious diseases are seasonal "In 2001, a researcher at the CDC hypothesized that seasonal changes in the hormone melatonin may play a role in modulating the immune system. In an ongoing study funded by a National Institutes of Health...

" Australians are going to extreme lengths to avoid coming into contact with mould. Known as 'mould avoiders', they are a group of individuals who become severely sick when they are around mould. Richard Barry, 32, has had to spend most of his days constantly aware of his surroundings in...

not at the same time, I take it?

I have only managed to find a small portion of the book that Wessely co-authored: Clinical Trials in Psychiatry. As you would expect, a lot is his usual historical stuff. But there is this bit which I thought may be of interest:

have been revisiting old tweets of SW:

https://www.statnews.com/events/how-investigative-journalism-succeeds-in-a-hostile-medical-environment-a-conversation-with-david-tuller-drph/ " Event Details This talk delves into a fascinating story that takes place at the intersection of science, medical practice, and human tragedy and...

Merged thread full details here: https://cummingsresearchpark.com/2018/11/02/hudsonalpha-scientist-awarded-45000-grant-to-study-causes-of-chronic-fatigue-syndrome/

"Date January 24, 2019 Time 11:30am - 2:00pm Location Fairmont Waterfront, 900 Canada Pl, Vancouver BC Illuminations is our much-anticipated signature luncheon focusing on the work of the Women’s Health Research Institute. The luncheon offers members of the community the opportunity to join us...