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  1. R

    Trial By Error: Some Thoughts About an Upcoming Article

    Isn’t this a good example of what you once referred to as a “circle jerk”? It occurs to me that had The Thing Were Are Not Discussing ever been made public, it would almost certainly have been less effective as propaganda. If keeping it private was a calculated decision, rather than a legal...
  2. R

    Trial By Error: Some Thoughts About an Upcoming Article

    Does anyone know if anyone has ever made a formal complaint about this? If not, is it worth considering, or would it be counterproductive at this stage?
  3. R

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Can someone please explain to me how this is classified as an RCT? A + B v A isn’t my understanding of a controlled trial.
  4. R

    Trial By Error: Some Thoughts About an Upcoming Article

    Worth remembering that Prof Chalder and many other authors of BPS studies are not medical doctors.
  5. R

    Trial By Error: Some Thoughts About an Upcoming Article

    When I first read this blog my heart sank. But on reflection I think it could turn out to be a real positive. What has been lacking for so long is public dialogue about the problems with the science - media coverage of the issues and public debate between academics with opposing views. If this...
  6. R

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    I'm sure I needed one for my Lancet letter - as well as having to register with their EES system. Perhaps I only needed to provide my ORCHID ID after the letter was accepted. But Dolphin has a lot more experience than me, so I'm clearly wrong about it being needed for all science journals.
  7. R

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    @Michiel Tack Thanks for doing this. I think you will probably have to submit your letter as a manuscript – although you might want to double check that. Technical info for submissions to the journal here: https://www.editorialmanager.com/jobm/default.aspx I would recommend getting an ORCHID...
  8. R

    UK Parliamentary debate today - Thursday 24th January 2019

    It’s interesting that you use the example of Fermat. One of the reasons that Fermat’s Last Theorem held such fascination for mathematicians for so long was because Paul Wolfskehl bequeathed the equivalent of $2million in his will to anyone who could solve it. The Wolfskehl Prize was eventually...
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    UK Parliamentary debate today - Thursday 24th January 2019

    Further to my post above, I see that the Science and Tech committee inquiry into research integrity is now complete: https://www.parliament.uk/business/committees/committees-a-z/commons-select/science-and-technology-committee/inquiries/parliament-2017/research-integrity-17-19/ This is MP from...
  10. R

    UK Parliamentary debate today - Thursday 24th January 2019

    I watched two things on Parliament TV this week: the ME debate, and a friend of mine who was giving evidence to one of the select committees. Whilst I am sure that the ME debate was another positive step towards achieving our objectives, I was also struck by the difference in the quality of the...
  11. R

    Open letter to the Trustees and Staff of Action for ME about the 'Toolkit for professionals'

    Thanks for taking the time to respond, Claire. There would appear to be some irony in the fact that AfME are calling for the suspension of CBT and GET (at least, I am assuming AfME is supporting the motion in today’s Parliamentary debate – I’ve not checked) and yet it appears to be unwilling to...
  12. R

    NICE Annual Conference 2019: "Transforming care"

    This bit could be interesting (from http://www.niceconference.org.uk/agenda):
  13. R

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    I have emailed the MEAction toolkit to all my family and friends asking them to spend 2 minutes to complete the form to ask their MP to attend the debate. I find that people are much more likely to respond to these sort of requests by email than on social media, where it’s eaiser to miss or...
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    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    This issue has now been fixed by MEAction. The form now requests full address and postcode.
  15. R

    Carol Monaghan granted a Backbench debate (UK Parliament) Thursday 24th January 2019

    Yes, I gather that @dave30th and @Jonathan Edwards also met Carol Monaghan in the autumn, so she should be very well informed. I also understand that a new briefing document for MPs is being prepared which deals specifically with the issues raised in the Motion. However, there is a difference...
  16. R

    Carol Monaghan MP needs a question for PMQs this week

    Let’s persuade Carol Monaghan to ask the PM something about ME on Wednesday at Prime Minister’s Questions:
  17. R

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    It’s taken me so long to write this comment that most of it has probably been said already but here is my take for what it’s worth: Sadly politicians and other public figures are subjected to abuse and threats on social media all the time. That is deeply regrettable but it has become a fact of...
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    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    But, as @Jonathan Edwards pointed out in his submission to the Scottish Parliament, the value of PACE is that it provides evidence that the BPS theory is wrong:
  19. R

    Blog: Changing the narrative #1: exploring a new approach to strategic communications in the ME community, by Valerie Eliot Smith

    I would add ME Research UK and #MEActionUK to that list, and possibly the Tymes Trust too, with MREUK and CureME leading the biomedical research and IiMER organising the international conferences. MERUK and MEA already support the biobank, which may need to remain a separate entity, but MEA...
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