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Having posted twice without reading the questionnaire, I’ve now read and completed it. I hadn’t realised that the questions were written by Forward-ME and that the descriptions of CBT and GET were in quotes. It’s obviously too late now, but I think it would have been helpful to provide the...

Further to my post above, the manual for CBT therapists also states: According to Wikipedia, an earlier 2002 “Manual of cognitive behavioural therapy for CFS” by Chalder, Deale, Sharpe and Wessely states: Unfortunately, the 2002 manual no longer seems to be available online so I’ve not been...

I agree with @Trish and @Peter Trewhitt ’s concerns about the definitions of CBT and GET. They are completely disingenuous. If they refer to the treatments as “evidence-based” then they must describe the treatments as they are described in the (flawed) research from which the (dodgy) evidence is...

@Action for M.E. has launched Walk with M.E. 2019: https://www.actionforme.org.uk/make-a-difference/fundraise/walk-with-me-2019/ It has received quite a lot of criticism on its Facebook page from those who feel it is inappropriate and sends out the wrong messages:

For those who can’t access the paper, here are its conclusions: If anyone wants help accessing the full paper, pm me.

I see that Dr Brennan Kahan is a lecturer in medical statistics at QMUL: https://www.qmul.ac.uk/blizard/staff/centre-for-primary-care-and-public-health/staff/brennan-kahan.html

And they are very seldom challenged when interviewed. Speaking of which, did anyone hear Wessely and Prof Sami Timimi on the BBC Radio4 Today programme this morning, talking about ADHD? (starts at 1.46.30 here: https://www.bbc.co.uk/sounds/play/m0001phx)* Listening to Timimi challenging Wessely...

Although I agree with the rest of your post, I disagree with the sentence above. I have been pacing for most of the past 25 years, but my life is in no way acceptable - not just because of what I am not able to do, but because of the levels of discomfort and pain that I endure. For me, pacing...

Thread about a Fiona Fox article for the Revolutionary Communist Party c.1996 for anyone who’s not seen it: https://www.s4me.info/threads/article-by-fiona-fox-smc-for-the-revolutionary-communist-party-c-1996.3452/ (This is the article where she claims that involvement with the RCP inoculates...

I think they all know the value of being helpful to the SMC when it comes to promoting their own work. I imagine Carmine Pariante may have volunteered his time at short notice once or twice. It seems to work a bit like the Masons. Does anyone know if they have a secret handshake?

Funny that – when I think of the SMC, dysentery comes to mind. I was tempted to reply to Pariante’s tweet by saying: “This article appears to show that Pariente et al AREN’T just a bunch of incompetent f@#&wits.” But I decided that discretion might be the better part of valour. I see that The...

I’m not sure that’s correct. The paper shows no correlation between pre-illness psychosocial factors and persistent fatigue, but, as far as I understand, it does not specifically refute the notion that a similar immune response could be triggered by acute emotional stress. Participants were not...

As @Simon M points out, the researchers "measured psychosocial factors including childhood trauma before the interferon-alpha treatment started. And these factors did not predict subsequent fatigue." I mostly agree with what Simon, Jonathan and Adam say above but I'm not sure that it...

Hi @Amy Proal. Thanks for joining the forum. Great to have you here. I’ve not managed to read the paper yet but just looking at what @Hutan posted above, one sentence caught my attention: “A snowball effect begins, in which the microbiome becomes increasingly dysbiotic as the strength of the...

This is very good and very well written. I particularly like the tone. We all have to try so hard to moderate our language and bend over backwards to seem reasonable because of the lies and stereotypes that have been propagated about people with ME, and Naomi has got it spot on with this in my...

Transcript from Hansard (https://hansard.parliament.uk/commons/2018-12-05/debates/AE0D2D86-28E1-40CC-A4E5-4DAC25733B52/Engagements): I fear he is on his way to the House of Lords.

2006 response to draft guideline from Association of British Neurologists: ...which not only failed to provide any reliable evidence to support the claim that CBT and GET are effective treatments for ME/CFS, but, as @Jonathan Edwards points out in his letter to the Scottish Parliament...

I agree. Also: 1) I understand that committee members should not be allowed to discuss the details of the NICE guildline meetings publicly before the process is complete, but it seems odd that someone whose views on CBT/GET are well known cannot continue to express those views while serving on...

The answer to my question seems to be yes. From Developing NICE guidelines: the manual

Perhaps @Jonathan Edwards could be persuaded to add this to his diary and ask her himself? I note that it is a UCL lecture series. I hope it will be recorded.