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Oh! Just read this. So Zaher Nahle's talk will be on again at tomorrow at 4pm, which is 3pm in the UK. :)

Argh! I was going to watch Nahle but have just realised that the UK is an hour behind and I've missed him. :( Will this be on YouTube later?

Thank you, @dave30th for being willing to say it like it is: For reasons known only to you and the other organizers, you have decided to invite to your gathering a man involved in what can only be called the kidnapping and torture of a vulnerable young Danish woman diagnosed with the illness...

Latest from David Tuller: After I posted yesterday’s blog about Per Fink’s upcoming appearance at the fourth annual Columbia Psychosomatic Conference being held this weekend, I received the following e-mail from Columbia’s Alla Landa. She is an assistant professor of “clinical psychology in...

Thanks for saying this. I understand that confidentiality makes things difficult but when NICE announces an initial selection loaded with BPS apologists, patients need reassurance that the committee isn't being fixed. Like @Andy, I'm content to take your advice to wait and see because I know...

According to NICE's website, they "are accountable to our sponsor department, the Department of Health and Social Care, but operationally we are independent of government." Are you saying that you think the DHSC is influencing who is appointed to the committee?

I can see where a conflict of interest might arise if someone is making a living from providing CBT and GET but not otherwise. Are you able to say anything about why you were seen as having a conflict of interest?

His review comments continue in what I now see is a long appendix but anyone faced with this is going to think they've got to read a review 18 pages long. I think a brief contents list with page numbers would help.

Much as I appreciate the effort that clearly went into this, I think that at 18 pages, this is only likely to be read by the ultra-keen and therefore not the ideal advocacy document.

This isn't sounding promising. Who do we know to be good? Nacul, obviously...

That sounds as though you might have just used the usual search box at the top right of the screen. Did you go here? https://forums.phoenixrising.me/index.php?pages/google-search/

Sad not to see @Jonathan Edwards on the list. :cry::arghh:

Here's Cochrane's policy on withdrawing reviews (this came up on another thread): https://community.cochrane.org/edit...ublished-cochrane-reviews-including-protocols Apparently a review can be withdrawn because of quality issues. :) The policy says, 'The decision to withdraw a published...

Here's Cochrane's policy on withdrawing reviews: https://community.cochrane.org/editorial-and-publishing-policy-resource/cochrane-review-management/policy-withdrawing-published-cochrane-reviews-including-protocols Apparently a review can be withdrawn because of quality issues. :)

This seems a bit odd. Reviews are always going out of date but it's news to me that any get withdrawn. They've got a date on, so people can see how out of date they are and take that into account. If the Cochrane Common Mental Disorders Group want to update anything about CFS, they ought to...

The other place allows you to do a Google search within the site, and there are quite a few references to MCT oil (not all of them especially useful).

https://www.perfectketo.com/mct-oil/ (I can't vouch for any of that info!)

Hi Espe - yes, the actions in which we can send emails are great. It's anything that involves getting on social media, or meeting with people in person or on the phone or on Skype, or breaching privacy by giving other patients our materials to pass on, that is a problem for me. I suspect that a...

If a trial had ever needed to be strangled by red tape, it was PACE.

Am not able to deal with home visits, alas. I think a lot of us are in that boat. :)