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  1. NelliePledge

    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    Yes the MUS approach should be properly assessed for financial cost and what impact it has on patients physical and mental health.
  2. NelliePledge

    Spoonseeker: 'Going Back in Time…' blog about MUS, January 2019

    My extremely simplistic take is MUS is mainly an issue around the ethos it promotes among GPs to avoid diagnosis of conditions and deal with symptoms only. As I was directly told by a young GP we don’t find it helpful to give that diagnosis- CFS - it’s best to treat the symptoms. In my opinion...
  3. NelliePledge

    Royal College of GP training facility (2018)

    I’m confused are there two different versions of the same product or two different products?
  4. NelliePledge

    Royal College of GP training facility (2018)

    Is this the same training material that’s being discussed on the other thread?
  5. NelliePledge

    Trial By Error: Action For ME’s Employment Advice

    Good stuff @Trish and @dave30th. It will be a very good test of AFMEs capability to deBPS their content.
  6. NelliePledge

    Sources of online information for medical professionals

    There’s a thread from when this came out good in parts only https://www.s4me.info/threads/a-review-of-bmj-best-practice-document-on-chronic-fatigue-syndrome-by-professor-james-baraniuk.6204/
  7. NelliePledge

    Petition: Review treatment of people with ME in Scotland

    a formal letter to those who spoke clarifying the misunderstanding would at least ensure they were aware of the issue and maybe it would be appropriate to request a correction or footnote added to the public record of the hearing.
  8. NelliePledge

    United Kingdom: BACME Guidelines for Severe ME, 2019 and 2024 update

    to be fair I stopped reading after Sussex ME.........
  9. NelliePledge

    United Kingdom: BACME Guidelines for Severe ME, 2019 and 2024 update

    :wtf::wtf::wtf::wtf::wtf::wtf::wtf::banghead::banghead::banghead::banghead::banghead:
  10. NelliePledge

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    Ministers have briefing provided by the civil servants in their departments using a range of sources. Also it is highly likely that the “training” would have been mentioned by RCGPs chief as part of the discussion she had with Brine in the run up to the debate. No doubt along the lines of “We...
  11. NelliePledge

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    Best me to it @Barry both channelling @Andy this evening ;) ETA we should set up a proofreading business
  12. NelliePledge

    Does your ME cause problems with falling asleep at night at a normal time? (Without sleep meds)

    Good poll topic @leokitten Thinking back to a few years ago when I wasn’t aware I had gradual onset ME I’d say it was no general problem but I was definitely starting to get some tired but wired episodes. Since I got diagnosed after becoming more towards moderate on mild/moderate end of ME...
  13. NelliePledge

    UK Parliamentary debate today - Thursday 24th January 2019

    I wasn’t in a study I was just on a CFS/me clinic programme but I definitely told them what they wanted to hear rather than what I was actually doing and how I was really feeling because I didn’t want to be chucked off the programme I was trying to keep my employer sweet by doing the NHS...
  14. NelliePledge

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    Wow they say practice makes perfect and @dave30th has had plenty of practice at shredding shoddy work by BPS proponents but this one is top notch :thumbup:
  15. NelliePledge

    Thread for all minutes of the UK CFS/ME Research Collaborative [CMRC] Executive Board Meetings

    As @phil_in_bristol was at the meeting maybe he could say something about what this means?
  16. NelliePledge

    METRIC (UK) Royal College of GPs' online course on ME/CFS

    Secondary gain my backside these people make me fume
  17. NelliePledge

    A general thread on the PACE trial!

    Maybe Mike Godwin would reach out to him to let him know that U.K. BPS lot have history of trying to get their old mates to back them publicly on Twitter. And if he’s been put up to it basically DB is just being ‘mugged off’. It seems unlikely DB just triggered all this off his own bat but if...
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