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And unless i missed it the statement was silent on taking the topic out of the mental/behaviour group

Much as NICE Cochrane are saying we now accept the current situation isn’t sustainable but please put up with something unfit for purpose that we will leave in place for a further extended period while we try to come up with something better.

Or for a trip back to the dark ages

Total calories consumed is much more complex than the size of your plate

They aren’t a charity are they? I thought they’re a “professional” group for people who work in CFS services.

I’m not convinced there’s any benefit of going out of area for any NHS CFS clinic even if one might have acquired a slightly better reputation than another. The negative effects of travel would need to be a big consideration.

Absolutely. Currently It’s risky because you can very easily get drawn in to doing more than you can manage. I thought I was going into it eyes open but I still ended up doing a lot more than normal and struggling then was in invidious position of just telling them what they wanted to hear. I...

@Trish also if you’re still employed & needing reasonable adjustments or on long term sick your employers will have an expectation that you’re taking available NHS treatment options. Applying for ill health retirement was similar to applying for benefits. The Pension Scheme Medical Adviser...

This GMC page might help. Before they investigate there is the first stage where they decide whether there is anything within their remit to investigate. https://www.gmc-uk.org/concerns/information-for-patients/how-we-handle-concerns

@Natalie heard back from ME Association that it’s scheduled to go up on their FB and Twitter at 12 noon today

Maybe something I would have been able to contribute to when I was healthy but I just can’t concentrate well enough to begin to get my head round the material.

Well it’s complicated by the introduction of IAPT and different arrangements in different parts of the country there is still a service that’s supposed to cover CFS in my area but it’s part of the community pain service and the CFS clinic was closed about 18 months ago but was still doing...

Ok thanks I don’t expect you to say more it’s good they were actively doing something :thumbup:

Four bananas make a bunch and so do many more

It’s ok saying it behind the scenes if you’re actually trying to influence change behind the scenes otherwise it’s basically just moaning and abdicating responsibility.

They - Dr Myhills team- are very dogged on this. Credit to them for their persistence.

Dunno about online version but assume Dr Weir will have a copy of this as he was on that group may be worth contacting him.

A lot of people don’t think about this stuff

Old Trots Network rather than Old Boys Network

Ok I have sent a message for him with a link and I will report back on the response.