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Good grief the patients' comments, it's heart-wrenching. They hear all of this and still can't find anything wrong with what they're doing. This is like being roasted (a comedy thing where someone has to sit while people make mean jokes about them) and never realizing that they're talking about...

"The kettle is clearly black" - The pot What's amazing is that this only shows how utterly incapable these people are of self-reflection. Then they have the hubris of inventing models where it is the patients who lack self-reflection. Which only emphasizes just how oblivious they are to their...

Which again emphasizes how unreliable the instruments they are using are, but also the inability to question them or the models they use when real-world data comes out nonsensical. It should be absurd to anyone that improvements in fatigue does not improve quality of life, it can only mean that...

This isn't for the general public, unlikely to get noticed much, but it's probably a good thing for the charities to get the message that no good comes out of associating with BACME or any other group of psychosomatic ideologues. I truly don't get what they think they get out of it. Our needs...

One major feature of evidence-based medicine appears to be that evidence-based conclusions cannot be overturned. We've seen this argued more or less in those terms when NICE contradicted the old evidence, there was a strong overall argument that it contradicted the old evidence, and that makes...

From the names involved, looks pretty solid.

And if I can put some perspective on the whole LC vs ME/CFS split, on the Long Covid sub-reddit, it used to be a constant controversy and over the last few months this has mostly disappeared. I rarely see it anymore. It still comes up, but there is barely any separation anymore in terms of how...

This campaign is awesome. Thanks for being awesome @Aaron.

Ditto! I love seeing them pop up all over the world. I gave a bit not long ago and will add some more soon. This is a necessary campaign, since authorities are working hard to suppress it awareness instead.

That's the most common comment on the Long Covid sub-reddit. Hasn't changed since the beginning. Some form of: "they were nice and attentive but nothing they did helped". Most people will thank someone who tried to help, especially when they are suffering. After I first got ill, one of the...

Not sure where best to post this, but in Australia the RACGP has recently 'updated' their ME/CFS (they use CFS/ME) guideline, changing only a few terms that all mean the same things, and continues to cite the Cochrane review as evidence for GET. They simply rename Graded Exercise Therapy as...

This contradicts a huge number of people who report otherwise. Way too many people have had altered taste perception that this can only be explained by bad methodology. I think we're really seeing a wall that medicine has hit in terms of instruments and methods. They're completely inadequate...

The patient community sure has. It's been very noticeable actually. Now that is an even bigger question. How this entire profession is constantly several steps behind sick people who are exhausted and suffering from significant cognitive problems. It always takes them years to get to where the...

This is literally the No True Scotsman fallacy. It's beyond absurd to rely on the most common types of logical fallacies as actual arguments. It's been argued for decades and not only is there no evidence for it, there is good evidence otherwise. And the vast majority of patients will always...

They really can't seem to care about patients' well-being and outcomes. This is really all self-serving mindless ideology. Might as well just have published a picture of a full septic tank with the words "fuck you" clearly spelled out on top. Zero difference here. It would be hard to provide...

So, by their own admission, just alternative medicine based on pseudoscience that treats nothing. And the point of this is? Ah, the same old "feel a bit better", which is asinine to the point of being insane in this context. Is "multi-layered explanation" a new code word for bullshit? Because...

Neither can even do that. That's how clownish and scammy this whole thing is. We keep hearing about how the only thing doctors can do about LC or ME (or POTS, or IBS, or whatever) is to treat or reduce symptoms, but they can't even do that, and CBT and GET obviously don't either. It's so...

Long Covid discussed in the Japanese legislature: Although I'm not so sure about the quality of what's discussed. "Post infectious symptoms, or so-called conduct disorder". Not quite.

But they don't have to. It's selling like hotcakes anyway. It's just a scam/belief, no one involved cares whether it's any true. They just care that they can sell it over and over again and not bother to do anything about us. They're never asked to put any evidence. Even the vast majority of MDs...

I like wishcare. In reference to wishcycling. Because it's mostly about ordinary people doing ordinary acts that make zero real difference while the real problem, the companies manufacturing products that can't be recycled but pretend that they can, suck up giant amounts of profit for...