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I have to admit that I've never actually tried to run a tribunal. It's possible my hunches on cost are not worth much. System seems extra crazy then. Some people seem to be going to a tribunal every couple of years over the tiny extra cost of ESA over unemployment. Is that £20 a week? They must...

I've only skimmed through, but that was the impression I got too. A positive step from the utterly terrible positions the BMJ was promoting previously, but not a clean break from the past, and it certainly felt like White had his own 'suggestions' on the text. So long as the field remains so a...

Also - are you connected to ME Action in any way? Might it be worth asking them to add Science 4 ME to their list of patient resources? http://www.meaction.net/support/

I didn't, but I don't tend to do those sorts of live-chat things.

There are lots of other, non-Perrin, CFS doctors who check for an association with sore lymph nodes. The trouble here is that it seems the Perrin techniques was being compared with something so useless that most patients would be able to come up with a superior physical exam themselves. I take...

Weird. Thanks for noting this stuff.

A part of me can't believe that's right... but then, I'm often surprised how much anything costs when it involves lawyers/drs/etc. Appeal everything!

Has he yet to up-grade?

LOL - There was something on his website that made achieving nothing sound impressive too.

"And because these patients were being seen there. I have to be honest, and say nobody really liked them." Nobody? Well, I guess that you have to be honest, don't you Simon?

I forgot to praise the blog itself! Really great to have Tuller digging into these things. It seems that there's so much to dig into.

It does seem like a move toward 'MUPS' type stuff is the best political ploy for them, and it's hard for such an amorphous group of patients to organise and push back.

A general piece, that doesn't mention PACE (although Stark was one of the statisticians involved in the re-analysis of PACE data): https://theconversation.com/sciences-credibility-crisis-why-it-will-get-worse-before-it-can-get-better-86865 I thought that this was an interesting summary of some...

Hard to 'like' that post.

It's always distressing when there's not open peer review comments to read.

In the past I know that some submissions did not seem to appear on-line immediately, but did end up in a later file of submitted evidence. I don't really understand how these things work.

There do seem to be some decent disability campaigners working on this stuff. I feel like I'm barely able to keep up with all the work they produce. I've never read Mo Stewart's book on all this...

I wonder if so much time has now passed that copies of things like that might start becoming more accessible under the FOIA? I can't believe that this has been going on for so long!

Their can certainly be some really good and compassionate OTs out there, who I expect would be unlikely to harm anyone, while being able to help many. But from what I've read of OTs specialising in ME/CFS, there are a lot of reasons to be cautious. Also, I've not found any specialist OT...

Yes, it did sound like he was pushing for improvements (hard to say from just the slides), but I'm wary of any assumption that we should be routinely paying OTs to do anything for CFS patients.