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  1. Esther12

    HPV vaccination and risk of ME/CFS

    Pleased to hear it was of some use. Just to be clear, there's no real evidence of the HPV vaccine leading to even just a slightly earlier occurrence of CFS in predisposed individuals... but it seems that something like that would be harder to pick up in a study like this.
  2. Esther12

    HPV vaccination and risk of ME/CFS

    Hi Hedgehog. This isn't an area I know a lot about, but I thought I'd share my views anyway. No single study can be definitive, but the discussions I've read about this makes it sound as if this was a decently done study (I've skimmed it and it did seem to do a good job on indicating HPV...
  3. Esther12

    Forward ME Group Minutes – 17th October 2017

    That summary from them makes it seem odd that there's no mention of Davie being asked about SMILE and LP.
  4. Esther12

    ‘Healthy Privilege’ – when you just can’t imagine being sick

    I think that there's something to that, but that it's also true that we all tend to be thoughtless about the injustices faced by others, and that plays a role in generating further injustice. re understanding ill-health: when I come down with a cold, or some other short term illness, I find...
  5. Esther12

    Homeopathy Is a Bitter Sugar Pill

    Still... it's likely to be less harmful than a lot of other speculative treatments with no evidence of efficacy that are promoted to people.
  6. Esther12

    The UK ME/CFS Biobank Christmas 2017 Appeal

    You are brilliant! - I had totally forgotten about this.
  7. Esther12

    Condition among athletes with similarities to ME?

    Body-builders have long spoken about 'over-training syndrome', early signs of it, and how to avoid it.
  8. Esther12

    Forward ME Group Minutes – 17th October 2017

    There have been some really annoying recent tweets from that Max Davie guy. The sort of ill-informed pseudo-sophistication I'm not used to seeing post-Tuller. Yuck.
  9. Esther12

    Forward ME Group Minutes – 17th October 2017

    Sonya does the CMRC ones which never seem to address anything much. Max Davie does seem to have said some really ill-informed things in the past, and from the minutes, it sounded as if he wasn't saying much.
  10. Esther12

    MRC invites proposals CFS and Myalgic Encephalomyelitis Aug 2017

    Hmmm... she's not on this list, and I'm sure I remember something about her leaving (although my memory can let me down): http://www.meassociation.org.uk/research/cfsme-research-collaborative/cmrc-executive-committee-becoming-a-member/ Just looking at the October 2017 minutes... this looks...
  11. Esther12

    MRC invites proposals CFS and Myalgic Encephalomyelitis Aug 2017

    I thought that she had stepped down from the CMRC because she was moving on to other areas? From what we've seen from the MRC with regards to PACE, it's hard to know whether this money is likely to be a good or bad thing.
  12. Esther12

    UK: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis National Outcomes Database

    I didn't know that the NOD had stopped. The results seemed pretty poor - maybe it was seen as embarrassing? When Simon Collin left MEGA it was said that he was also leaving Bristol.
  13. Esther12

    Unrest - reviews and general articles

    From Bafta: Unrest | Film Q&A Director Jennifer Brea + Producer Lindsey Dryden explain the journey Jennifer's illness took her on to create her documentary Unrest...
  14. Esther12

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    There does seem to be a growing expectation that researchers should do 'public engagement' type stuff. That must not be fun if your work is so poor that a large number of people are able to pick it apart in front of you. Please cease and desist the harassing questioning of research?!
  15. Esther12

    SIGN NOW! Jeremy Corbyn's e-card needs 20 signatures to reach 1,000! INTERNATIONAL SIGNATURES WELCOME!

    I think so. Problems in the UK have ended up causing problems for patients all around the world - sorry about that, we're a sick, sick society!
  16. Esther12

    SIGN NOW! Jeremy Corbyn's e-card needs 20 signatures to reach 1,000! INTERNATIONAL SIGNATURES WELCOME!

    Thanks @Alis - I always forget about all those FB groups.
  17. Esther12

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    I bet that there were loads of problems with Wessely making false claims over the years that just were not recorded. Now everyone is walking around with a recording studio in their pockets it's much easier for someone like Crawley to get herself into trouble.
  18. Esther12

    13 Nov 2017 | Tuller & Lubet: 'Trial By Error: The Surprising New BMJ Best Practice Guide'

    Don't feel you have any responsibility to reply at all! I'm sure that I often let threads of a discussion drop just because I forget about them. Sorry to hear about your PIP burden, and very best of wishes with it all.
  19. Esther12

    Tymes Trust - No reported harassment of staff at Bristol University

    When was the last time you actually saw something like that take place? It seems depressingly rare to me. Personally, I think that written debate is probably best for matters like this, but also think that Wessely/White/etc would now struggle to do a good job defending their work. I think that...
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