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Yes because there’s so little research been done it’s not surprising people don’t get it straight away. Plus people generally don’t read into the detail of any information, tending to skim through.

The only way to know if this round will result in some progress is to continue with it, chipping away at the status quo with common sense, science, the back up from NICE guidelines, cross party political support through APPG. Like the NICE guidelines it will be less than desired but if we can...

Yeah I record more on days when I’m doing (clothes) washing and yeah those numbers seem high I’m moderate and on bad days less than 1000 steps

Snake oil.

For those like me who don’t know anything about Zeynep they have almost 490k Twitter followers. Professor at Columbia University

As far as I’m aware it’s standard practice for ministers offices to send out a steer on how to draft letters for the minister’s signature and also on any preference the minister has for the format of written briefing. This is a storm in a teacup. Sadly the press prefers to focus on such non...

Well we shouldn’t be surprised he wanted to comment. He is after all an expert on gaslighting.

Interesting @rvallee I had to go down to 15 hours paid a week but often couldn’t reliably manage that so yeah 10-15 hours a week. Which is unviable financially and in quite a lot jobs/roles you’re not making a viable contribution to the employer/clients due to deadlines.

After I finally got diagnosed I tried for 2 years to try to get back to reasonable/consistent level of functioning in my job. A lot of adjustments were made. Nothing of value other than ticking a box came from the CFS clinic PACE light course during that time. People will persist in trying for...

Apologies for an extremely basic question. We know there are issues with misdiagnosis in both including people as ME/CFS but also taking years for people to get an MECFS diagnosis. It seems anecdotally that some people with MS first get diagnosed with MECFS then after a few years get MS...

Good luck with moving home @Valerie Eliot Smith i know from my recent experience how demanding that process can be. I hope it all goes well.

Yes @Sasha We want a moment just like Julia Roberts in Pretty Woman going back to the rude shop assistant “big mistake”

Yeah I agree. The first one was a bit confusing because the colours are similar and then the shapes show the difference

I thought it was pretty good too

I agree Andy for short pieces getting the key message over is all there is time for.

4000 people though

Agree it should be all focused on the study and definitely Chris did a good job of bringing it back on topic. The journalist feeble attempt to spice it up with a bit of populist controversy but Chris didn’t bite. :thumbup:

Flannel = Low content waffle

Done it :thumbup: thanks to all the team for hard work getting to this point.

Yeah exactly, clearly the quote invented by a clueless healthy person who fails to understand the lack of support we receive.