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  1. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    I hope this comment is tongue in cheek! Isn't she prescribing antibiotics to youngsters with appendicitis?
  2. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Thank you @Jonathan Edwards for all that you have done behind the scenes on this.
  3. M

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Does @dave30th know about this yet, or is it the middle of the night in Australia?
  4. M

    Esther Crawley

    Overall yes, but they are cheaper than an operation, even though both options include hospital stays. Antibiotics for a recognised bacterial infection are still allowed.
  5. M

    Esther Crawley

    Does anyone know how many psychologists are in the list of names of people involved?
  6. M

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    This doctor has a fairly active Facebook Group, could message her, via this: Dr Hng's ME/CFS Friends The book is OK. It is an easy read and does include relevant info/descriptions. It did annoy my daughter, due to refs to being ultra busy, burnout style, but keeping going as long as she could.....
  7. M

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    I suspect that some of these boards, the CDC and NICE are reluctant to publicise, with a loud fanfare, that these treatments are no longer recommended. due to potential harms as it could expose them to lawsuits and other comeback.
  8. M

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    These comments are from 1999. Some clinicians and researchers have changed their views as they have seen more PwME and have kept up with Biomedical research. The BPS brigade are stuck in the last decade in their views.
  9. M

    Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

    Thanks for picking this up @Sly Saint. So why is care for ME under the services for mental health and learning disability? Leeds and York Partnership NHS Foundation Trust - Home https://www.leedsandyorkpft.nhs.uk/ Leeds and York Partnership NHS Foundation Trust provides mental health and...
  10. M

    UK House of Lords/ House of Commons - relevant people and questions

    Could the CQC (Care Quality Commission) have a role here?
  11. M

    May 12th/ME Awareness Month - suggest how S4ME might get involved.

    Wonder what happened to all the beds used in the Olympic Opening ceremony?
  12. M

    Children's education

    My daughter has in the last couple of weeks had twins round. She has not seen them for a few years, but they were lovely and understanding and are planning to see each other at least monthly. It was a real treat to see her so happy after seeing her peers, as it can so often be a two-edged sword
  13. M

    Children's education

    @Amw66 Roughly how much does Nisai cost? Is your daughter doing GCSEs, or whatever the Scottish equivalent would be?
  14. M

    Gary Burgess talking ME/CFS BBC Radio 5 live Wed 1pm

    Please also bear with us when are comments are critical and try not to take them personally. 'We' may well be speaking in grief, frustration and pain at the inexplicable hostility that the psychs have shown, unrelentingly for decades and the dreadful treatment, disbelief and judgement showered...
  15. M

    Gary Burgess talking ME/CFS BBC Radio 5 live Wed 1pm

    @Gary Burgess My daughter is 24 next month and has ONLY been ill for 7 and a half years. Fortunately she escaped the threat of being taken into care because she could not get into school as in 2010, school leaving age was 16. Youngsters are still in this situation and being sectioned to undergo...
  16. M

    Gary Burgess talking ME/CFS BBC Radio 5 live Wed 1pm

    Gary you did an amazing job and got the message re the severity and debility of the illness over brilliantly. Congrats on getting the one hour slot and some great guests. I think Julia N has done really important biomedical research and stuck with the ME community valiantly. There are many...
  17. M

    Correspondence from the DWP for 2003

    When will they realise that these people WANT to work, be in education or training and want to have normal lives.
  18. M

    The PRIME project 2010

    Jane Colby at TYMES Trust would probably know what, if anything is ongoing
  19. M

    Tuller: Trial By Error: Our Exchange of Views with BMJ Open

    Virology Blog was down briefly a few weeks ago. Do we suspect Trump, Putin or the BPS Brigade?
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