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Thanks Mr Catlover/Daysailor for posting this info. Having read some examples of assessment reports I was not too surprised by some of the many "you said you can do A so I've decided you can do X,Y and Z" in my friend's report. However it is gut-wrenching for the claimant to see her words...

Burst out laughing earlier when I got the report. Physio has noted that friend worked as a self-employed builder , but had to give up X years ago for health reasons. What she actually said was that she used to do some of the admin for her husband who is a self-employed builder.......!!!!!! If...

Also I'm so sorry to hear about your ordeal so far. I know they are trying to reduce fraud. But it's the conpeople who have the brain power, stamina and experience to work the system Writing good letters/reports is one thing that physios/OTs in clinics could help with!

I will do an email. A longstanding friend has just been turned down for the mobility element of PIP, having been on full amount for DVLA (apologies if I use wrong terms/acronyms). I have only been involved since last Nov when she was sent the form. I joined the benefits and work site to get a...

From the last few examples it seems they are picking on the even more vulnerable, eg single Mums, non English speakers for their threats. Some people have spoken privately with David Tuller and TYMES/DR Speight have helped c 200 cases. BUT parents are terrified of the consequences of speaking...

This is why the current Guidelines need to go out with a Health Warning. There are other youngsters whose parents are too scared to speak out, for fear of losing their children.

TYMES Trust have worked with nisai to provide virtual classrooms see http://www.tymestrust.org/pdfs/succeedingwithme.pdf. I was at a TYMES meeting in 2014, where they presented awards to several youngsters who had gained qualifications in this way. It included a girl from a small Channel Island...

Re the gender ratio, some of us are carers. I am, but also represent a daughter.

My 16 year-old daughter would have been distraught to be told there's no cure, when she was first diagnosed. Having a close friend of the family with ME, who has worsened significantly over the last 20 years, we were very keen to describe it as post-viral fatigue initially. I also keep up with...

@Valentijn. There was "transfer of relevant info", including that highlighted above, and other useful items. i really don't want to go into too much info on a public thread.

We also talked a great deal about harms from GET, including personal experience from some, currently there are teenagers being threatened with intense inpatient treatment if they don't get better. .