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  1. rvallee

    Unravelling Fibromyalgia-Steps Toward Individualized Management (2017) Hauser, Clauw, et al.

    That seems moderately competent. I'm not impressed by further sub-grouping by mental health, I don't think they are particularly relevant here any more than subgrouping about financial proficiency or possible gambling addiction just because chronic illness commonly leads to poverty. Let's deal...
  2. rvallee

    #MEAction: Dr. Koroshetz Declines to Take Urgent Action for ME. Read His Response and Take Action!

    The CFS subreddit is not big on engagement. It's more of a support group. Still worth trying but that's normal.
  3. rvallee

    News from Scandinavia

    This is rare and needs to be said. Whenever people are saying that "ME is real", what it means is that what patients have consistently reported and has been researched as a flu-like type of illness for decades is the real description of this disease. It doesn't mean anything else and it is in...
  4. rvallee

    The Neurological Alliance: [UK] General Election 2019, Our Neuro Pledge 2019

    All diseases are equal, some are more equal than others.
  5. rvallee

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    This is excellent. Thank you! Even if it doesn't lead to immediate change, it's important to have it out there, to add up to the evidence of how morally and intellectually bankrupt the entire BPS ME paradigm is. Opinions matter, but people should not be allowed their own facts.
  6. rvallee

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    The fact that after 30+ years of this type of treatment all there ever is a few anecdotes is the biggest tell in the damn universe. It's been in official practice for 20+ years in some places. Dozens of trials. Still with the anecdotes. Only anecdotes. All anecdotes all the time because the...
  7. rvallee

    Mold inhalation causes innate immune activation, neural, cognitive and emotional dysfunction

    Which mold? This mold: Interesting bit: the researchers used a placebo saline control. So cute. Are there expectations that mice respond to the placebo effect? It's normally framed as a response to expectations and the therapeutic effects of being in the charge of competent medical...
  8. rvallee

    Mold inhalation causes innate immune activation, neural, cognitive and emotional dysfunction

    *In mice I find it interesting to find the usual "associations" of anxiety, depression and emotions. Seems bloody obvious that it yet again reinforces the fact that those "associations" are all bogus and the product of a poor "diagnostic" process. Though I have no idea how they identify any of...
  9. rvallee

    Trial By Error: An Open Letter to Dr Godlee about BMJ’s Ethically Bankrupt Actions

    Weird interactions from the quacks (likely Vogt) at recoverynorge trying to promote their anecdotes on LP below the first tweet by Tuller. No idea what's the point, but first I've seen of them responding so something must be happening somewhere that is having an impact on their PR campaign.
  10. rvallee

    The Unaware Physician's Role in Perpetuating Somatic Symptom Disorder, 2019, Morabito/Barbi/Giorgio

    Physicians don't diagnose those because then they could be held responsible for making spurious diagnoses without evidence. Zero surprise here, this construct has no basis in reality so obviously physicians only use it as an implied dismissal, written in notes but never made official. Zero...
  11. rvallee

    The Unaware Physician's Role in Perpetuating Somatic Symptom Disorder, 2019, Morabito/Barbi/Giorgio

    I don't know what the standards are around the world, but referring to how medicine happens in Canada, there is a principle of absolute immunity for withholding care if it is judged to be inappropriate. It is the act of making a medical decision that begins accountability. Refusing to provide...
  12. rvallee

    The Unaware Physician's Role in Perpetuating Somatic Symptom Disorder, 2019, Morabito/Barbi/Giorgio

    Wow. This actually manages to reach the level, and I believe this is the proper academic terminology, of batshit insane. Impressively delusional. It's like distilled ignorance mixed with anger and arrogance. This level of detachment from reality is not normal.
  13. rvallee

    News from Scandinavia

    The logic behind defending this is incredible. The status quo is so clearly a complete and total disaster for the very reason of this obstinate belief in a psychogenic thing with zero evidence, and the response is angry, aggressive even, ranting that, yes, this is what we deserve and in fact...
  14. rvallee

    News from Scandinavia

    That was just plain bizarre. So many false claims. When you have to resort to this much nonsense to promote an ignorant opinion it's clearly indefensible. It's religious dogma at this point, it's not supposed to make sense.
  15. rvallee

    M.E., UK Research Ethics-Public Health Journalist Dr. David Tuller & Guests Nov 5 2019

    That's a misrepresentation as well. No one's saying it is dangerous per se anymore than people are campaigning to ban, nay eradicate, sugar because it can be harmful in some circumstances. Have random people try it, nobody cares. It's as harmless as astrology in most circumstances. Completely...
  16. rvallee

    Engaging stakeholders to refine an activity pacing framework for chronic pain/fatigue: A nominal group technique -Antcliff, Keenan et al Nov 2019

    That's a completely pointless exercise. It takes the two most common symptoms in all of medicine, both with entire ranges of different meanings and circumstances, and tries to find a universal framework. This is way over simplistic and essentially pointless because of the confusion that has...
  17. rvallee

    Antibiotic exposure and risk of Parkinson's disease in finland: A nationwide case‐control study

    Interesting question is whether it is the antibiotics themselves or the pathogens that those antibiotics target. Or an immune system somehow predisposed to be more susceptible to those pathogens. So an association, which in real science is not sufficient to argue causation, unlike in BPS...
  18. rvallee

    Livestream: Ron Davis to speak at Columbia University

    Our knowledge of physiology is still very superficial. I'd be curious to know what % of all there is to know most physicians think we have achieved? 40%? 50%? I doubt many would estimate it at above 50%. We still have a whole order of magnitude to go by until we can comprehend the many active...
  19. rvallee

    Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

    Re-submitted 3 days ago. Both still left at "pending". Oh, well.
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