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Dr Myhill made a presentation last May on the PACE trial and about her complaint to the GMC. I thought it was an excellent summary of the issues and how they add up to a case of scientific fraud. The violations are so egregious that they are hard to believe, amounting to system-wide failure that...

This is seriously disappointing because ultimately there has only been one actual official proceeding regarding PACE, the HRA, which clearly stated that most of it fell outside of its remit besides dotting all i's, crossing all t's and getting approval for all the shady stuff that they did to...

Textbook example of how a little knowledge can be dangerous. His knowledge of ME is entirely superficial and he seems to fill in the gaps with the kind of hope that ends up being toxic when it's unrealistic, which it absolutely is. Pretty similar to some people's rationalizations that poor...

This is a sensible reply but I don't see how any of this should apply to any particular disease. There is plenty of value in studying the emotional distress that comes from disability in general, especially as it would reveal how much of it is caused by health care systems that are shockingly...

I noticed that some of the videos were made private, including this one. Everything alright?

There is not a single reason why such a measure should be developed with children. Especially given Crawley's lack of ethics, she should not even be allowed to work with minors anymore. As a pediatrician this is a bit of a pickle but she brought this on herself. Here the failure is on the...

Although this shows how, yet again, the NIH misses every opportunity to show its commitments to us, it could still provide useful clues and a good comparison base for exercise studies. In particular it will focus on deconditioned participants and compare them to highly active individuals. This...

The real challenge with projects like this is quality of content. It takes a huge effort to ensure that, with associated costs that are pure loss and those don't scale well, not much economies of scale. To work properly it would need serious public money and backing from institutions, as they...

Nothing prevented this from happening in the first place. Yesterday or 5 years ago. Given the economic impact if it happens, almost zero chance of this happening. Pipe dream. Let's keep in mind the SMC was created to improve science journalism. The problem of the old boys club stifling...

The effort going into diagnosis of depression and anxiety can sometimes be shockingly lazy. And it's rarely overturned even when an actual explanation is found, instead turned into either the association or risk factor that BPS folks love to point at. I once saw an ENT to check for explanations...

The results are pitiful. That doesn't seem to be a concern. We're not talking about solving nuclear fusion here, or solving the complete biomedical puzzle of ME. Trying and failing is not a real option. It's a simple message and easy to see that it was not received. Pretty much the opposite in...

I gotchu, bizarre formatting but whatever the substance is pretty good. There really needs to be more research into the lived reality of ME patients, the consequences of abysmal quality of life and the high suicide rates that follow. Those are almost all the result of negligence and...

Sounds like the definition comes from the same general sources as the P-E-N thing from Eysenck, rooted in simplistic explanations of pathological behavior rather than normal human behavior. Redefining common words seems almost universal in psychosomatic medicine and psychobabble in general.

I kind of like those papers that just say plainly what they mean and make it all super awkward for the people who try to pretend that it's not what it means even though of course that's exactly what they mean. Bizarre that it comes here from a paper that argues for observed physiological...

This is weird. It's a small trial with few data points, statistical analysis should be pretty straightforward. What's the point in publishing this besides being able to bring forward their personal preference about what they hope the results to be? You can't submit an unfinished paper in school...

Pretty good example of what the problem is, how flawed the thinking about fatigue is in medicine, what it even means at all and how confusion arises from people who look at patients with a high number of symptoms and decide to call it fatigue despite the patients saying "wait, no, you dismissed...

I was curious about what "frequent colds" means since it's hard to assess for a whole life, memory being unreliable and all that, and it's: Which makes more sense. That was my experience but I'm not sure if they were actually regular colds or flus, they seemed a bit different but not being able...

That's mostly because of the stigma and disinformation. Given the size and severity, if the disease were taken off the blacklist and word was communicated from medical and public health institutions that denial is over and it has to be taken seriously, even if there were no public funding at all...

Don't put pressure on yourself Andy. All this work is very appreciated and we understand it's a lot. Most of us can't significantly contribute so any contribution matters and being able to keep at it is more important.

That seems excessively overdiagnosed. Hopefully this leads to better diagnostic tools that reduce this absurdly inflated number. Being able to reliably diagnose those two would go a long way to removing a lot of the noise in medicine. The 80:20 female:male ratio is a bit on the suspicious side...