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  1. Wyva

    Burning muscles — is it myalgia / pain?

    I can't answer this either, I just wanted to say that I have this too. However, in my case this doesn't happen when I do something on an "OK" day. I only experience this kind of muscle burn when I overexert myself on an already bad day. This is how I'm sure this can't be the result of...
  2. Wyva

    Neuropsychological Measures of Long COVID-19 Fog in Older Subjects, 2022, Lauria et al

    And I've also heard of fibro fog and chemo fog, so I guess some diseases had their own version even before covid.
  3. Wyva

    EDS, hypermobility, and the link, if any, to ME/CFS

    This post has been copied to a new thread: ME/CFS co-morbidities I didn't know where to post this, but the ME Association had an online survey about common health conditions in pwME. The current result: Which of the following conditions, which are more common, or appear to be more common in...
  4. Wyva

    Co-morbidities - prevalence in people with ME/CFS

    Post copied from this thread: EDS, hypermobility, and the link, if any, to ME/CFS I didn't know where to post this, but the ME Association had an online survey about common health conditions in pwME. The current result: Which of the following conditions, which are more common, or appear to be...
  5. Wyva

    United Kingdom: Science Media Centre (including Fiona Fox)

    I came across this article in Google News and it showed me a short part of a sentence (relevant to the keyword I used): "Another example relates to the activism of chronic fatigue syndrome (myalgic encephalomyelitis or encephalopathy) campaigners, whose fury at..." So it's probably "worth"...
  6. Wyva

    A nationwide questionnaire study of post-acute symptoms and health problems after SARS-CoV-2 infection in Denmark, 2022, Sørensen et al

    From the paper: At least one diagnosis of depression, anxiety, chronic fatigue symptom (CFS), fibromyalgia, or post-traumatic stress disorder (PTSD) with new onset within the first 6, 9, or 12 months after the test was reported by 7.2% of test positives, compared to 3.3% of test negatives. The...
  7. Wyva

    A nationwide questionnaire study of post-acute symptoms and health problems after SARS-CoV-2 infection in Denmark, 2022, Sørensen et al

    Abstract A considerable number of individuals infected with SARS-CoV-2 continue to experience symptoms after the acute phase. Here, we report findings from a nationwide questionnaire study in Denmark including 61,002 RT-PCR confirmed SARS-CoV-2 cases and 91,878 test-negative controls aged...
  8. Wyva

    Sound sensitivity

    So now I seem to have some sound sensitivity but I don't know if it is the typical ME/CFS hypersensitivity or not. I never had sound or light sensitivity before, even when I felt much worse at the beginning of my illness. In the past few years I've been getting worse and worse though and this...
  9. Wyva

    A study of high neuroticism in long-term survivors of childhood, adolescence, and young adult cancers, 2022, Dhal et al

    David F. Marks also commented on this, demanding the retraction of 87 of his publications: King’s College London’s enquiry into Hans J Eysenck’s ‘Unsafe’ publications must be properly completed, 2019, Marks, Buchanan Abstract This journal recently drew attention to an extensive body of highly...
  10. Wyva

    Recording of Dr James Baraniuk's May 17, 2022 webinar, "Nociplastic pain in ME/CFS and overlap with migraine and other disorders"

    Just an n=1 story but I remember seeing someone like that in the Hungarian long covid FB group. Someone with POTS kept asking her if she is sure it happens when she is in a horizontal position and not upright and she said yes, it is horizontal. She was the only such person I've seen though...
  11. Wyva

    Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop, 2022

    It is quite a long report from the American National Academies, you can find a summary of key points in this article: Long COVID: National Academies’ Panel Examines Long-Term Health Effects of COVID-19
  12. Wyva

    Examining Long-Term Health Effects of COVID-19 and Implications for the Social Security Administration: Proceedings of a Workshop, 2022

    Contributor(s): National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Care Services; Laura Aiuppa Denning and Erin Hammers Forstag, Rapporteurs -- 'Long COVID' refers to the wide range of long-lasting symptoms experienced by some patients...
  13. Wyva

    U.S. News: Chronic Fatigue Syndrome: Symptoms and Treatments

    Problematic article, which aims to give a general description of the disease: https://health.usnews.com/conditions/chronic-fatigue-syndrome For example in the section about diagnosis it only mentions Fukuda and in the treatment section it says: Currently there is no cure for chronic fatigue...
  14. Wyva

    Aphaeresis/ Apheresis (for removal of microclots)

    (Off, but in Hungary there is a paleontologist whose name literally translates as Attila Ancient. There was also a drug programme coordinator whose name means Peter Powderbreaker. These are really rare, unique surnames, I've never heard them anywhere else and that makes this even funnier. Oh...
  15. Wyva

    News from Southeastern Europe

    This article was posted on Facebook by the Serbian ME/CFS association. An interview with prof Branislav Milanovic about the disease: Google translate: What is chronic fatigue syndrome and why it cannot be cured by rest
  16. Wyva

    Vagus Nerve Stimulation

    Press release: electroCore, Inc. Announces Study of gammaCore Sapphire™ for the Treatment of Post-COVID Syndrome ROCKAWAY, N.J., July 07, 2022 (GLOBE NEWSWIRE) -- electroCore, Inc. (Nasdaq: ECOR), a commercial-stage bioelectronic medicine company, today announced Mayo Clinic is initiating an...
  17. Wyva

    News from Scandinavia

    Oh, sad to hear that. I remember that after the mononucleosis he was asked if this was similar to depression and he clearly said it wasn't. Then someone posted an article from much later where he said something like he managed to overcome it and it sounded like he was talking about mental...
  18. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I've found a 25-minute long presentation from Dr Guth-Orji (from my previous post) on YouTube on the effects of covid on aviation safety. She talks a lot about the various sequelae of covid and that it should be taken very seriously because almost every one of these can effect a pilot's...
  19. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    An abstract from the International Conference on Sports Science, coming from the Hungarian Defense Forces Medical Center, Aeromedical and Military Aptitude Research and Treatment Institute. Data based on 47 divers and parachuters with a median age of 36. Effects of COVID-19 infection on...
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